The first CNA they sent me didn't work out. I'm not sure what the company was thinking. Here's the text sent to a friend who is still in the nursing home dealing with CNA's, nurses and roommates from hell.
"Oh Lord! My new CNA is 70 years old. I was like, what? Who sends a 70 year old woman to help a person in a wheelchair? It's her job so I'm not holding back. I have her act as my legs. I like her but I have a feeling she'll quit by winter. She says the laundry room from my apartment is too far to walk and the trash cans are so far they might as well be in a different zip code. lol My thought? Stop being a CNA BEFORE the age of 70 or don't complain about the distance you've got to walk. 70! They can't be serious. Thank goodness I know CPR. I may have to do it on her aged self after she gets back from the trash.
Update: They're sending me a younger CNA Monday morning, 8 am. We'll see how that goes. lol. The 70 yr old CNA and I talked frankly about her inability to handle my case. Crazy to send her to me."
You know what I always worry about? How will she feel about seeing my little nub, the amputation site? Will she be grossed out? Is it ugly to her? Am I ugly to her? The thought now is, it's not ugly, it just is what it is, but it's not ugly. I'm not ugly because I've had an amputation. Slowly, I've gone from ashamed of the amputation to 'just' being a bit self conscious. Lets hope that a CNA is used to seeing such things because I have such things. Then again, I'd hate to whip it out - Bamb! - then have her pass out on my floor. ...continue reading "CNA and Self Confidence"
Journaling until I'm blue in the face. Work in progress.
"Someone Else" in watercolor and acrylic. All work shown is on 8.5 x 5.5 paper.
"Froggie Smiles". These are photographs. I'm looking forward to scanning so these look right. This is much darker than the actual painting. I'm working on the details of all these pieces. Once I have the colors in mind it doesn't take long to finish.
This last one was created for the sole purpose of testing out new paints. It's a paint pallet sheet. Sometimes when I just need to draw but there's nothing specific to do, I draw lines on paper this way and wait to use it later to test paint or clean brushes.
Fifteen days total but halfway through I began to lose myself to the constant and extreme pain. My medication cocktail sometimes caused me to see dragons and aliens. I'd been in intensive care for the bilateral pulmonary embolism and life threatening blood clots. I was about to begin a chapter of life I'll never forget, one that has left physical scars and emotional pain. What I've decided to do is express some of those experiences through art.
The first experience in multi media is called Three Birds.
Half way through ICU care I was losing it. The doctors worried I'd have to go on dialysis. My kidneys were shutting down, my heart was in trouble too. I was in trouble and I knew it so I asked my God, "Are you with me?" I needed to know if He knew his servant needed his comfort and approval....continue reading "Three Birds"
I got the apartment and move in Saturday! I already have the keys and lease.
I'm excited and a bit nervous, mostly excited. I have to figure out how to fit my stuff in this place. One thing I know is I'll have a 55 gallon aquarium in there! Somehow, some way, that aquarium WILL fit. I'm going to split it in half, half bedroom, half art studio w tea bar. I'll keep the doll collection in the bedroom area. I'm sure my little studio will feel like home in no time. ...continue reading "Saturday is moving day"
The last few days have been torture. I hurt from the top of my head to the soles of my feet. The amputation site is having an electric storm of shock and neuropathy. It's been a bad few days and I've done very little reaching out. I've just been waiting for medication time!
The foot that was amputated coincidentally was the foot with Chronic Reflex Sympathetic Dystrophy. Though amputated for other reasons, I hoped the RSD fire and pain would stop, it didn't and won't. It doesn't work that way. ...continue reading "Enduring the Days"
I asked you to do the surgery. You said you could or a colleague but I trusted my life in your hands. It felt like there was so much at stake, more to lose than body parts. I can't explain how afraid I was that I'd throw a blood clot or bleed to death. I was so scared I kept calling to my mother!
I had a dream about her last night. She was a helpless infant in my arms. I rolled around in my wheelchair with her head on my shoulder. I made sure she was safe and warm. Safe. ...continue reading "Not Cut and Dry"
I have a few more art supplies coming from Amazon.com which will give my heart another reason to beat happily. I don't look happy in the photo bc I'm not. I was at the beginning of whatever my body is doing right now. I'm hacking and spitting up, vomiting and utterly miserable feeling. That's how my body feels but when I get a visitor I perk right up and chat and laugh like my old self.
My room has changed again. I'm back in the rehab area instead of the nursing home or long-term care section. I was here when I first arrived and it's good to be back.
I am not good with change but this here was needed because I was getting depressed in the other area. I struggled to keep depression low and from consuming me. Over here on the rehab side is much better. I hope things continue to look up.
Dr D and I talked at our regular time. I said I'm hungry but nothing sounds good. I said for several days I've not been myself. I yelled and cursed, complained and refused their assistance. I wanted to be left alone to sleep. The pain was out of control and I couldn't stand it. A few days have passed since the surgery and it's better but still bad, just not screaming, cussing bad.
Of course I'm afraid of the pain. I'm afraid to put my foot on the floor bc it hurts but I'm more afraid of losing progress. I read over entries and think about how strong I felt bc I could get in the wheelchair on my own or bc I was able to get dressed on my own. I don't want this surgery to make all that for nothing.
Healing from this one could take up to 12 weeks. Somewhere in this 12 weeks will my confidence be lost? Can I, one last time, overcome the fear and pain just to know what it feels like to dress myself again? Of course I can, but I want this to be the last time I relearn the basics. I want this to be the last time grueling pain rules the day and night. May I have that, please?
Dr D asked if I've been dissociating or switching. One little one pops out from time to time but usually I'm alone when she does. Ariel is quite young has zero desire to speak to anyone. She pops out because she catches a glimpse of our new teddy bear or tea or something pink. She's sad and upset about how much pain we're in but I don't know if she totally gets why we're in pain. I hope not bc she's just a kid and all this is adult size trauma.
It's coming on 7pm which means it's time to read and relax. Time for another cup of tea. There's always time for another cup of tea.