The first CNA they sent me didn't work out. I'm not sure what the company was thinking. Here's the text sent to a friend who is still in the nursing home dealing with CNA's, nurses and roommates from hell.
"Oh Lord! My new CNA is 70 years old. I was like, what? Who sends a 70 year old woman to help a person in a wheelchair? It's her job so I'm not holding back. I have her act as my legs. I like her but I have a feeling she'll quit by winter. She says the laundry room from my apartment is too far to walk and the trash cans are so far they might as well be in a different zip code. lol My thought? Stop being a CNA BEFORE the age of 70 or don't complain about the distance you've got to walk. 70! They can't be serious. Thank goodness I know CPR. I may have to do it on her aged self after she gets back from the trash.
Update: They're sending me a younger CNA Monday morning, 8 am. We'll see how that goes. lol. The 70 yr old CNA and I talked frankly about her inability to handle my case. Crazy to send her to me."
You know what I always worry about? How will she feel about seeing my little nub, the amputation site? Will she be grossed out? Is it ugly to her? Am I ugly to her? The thought now is, it's not ugly, it just is what it is, but it's not ugly. I'm not ugly because I've had an amputation. Slowly, I've gone from ashamed of the amputation to 'just' being a bit self conscious. Lets hope that a CNA is used to seeing such things because I have such things. Then again, I'd hate to whip it out - Bamb! - then have her pass out on my floor. ...continue reading "CNA and Self Confidence"
Journaling until I'm blue in the face. Work in progress.
"Someone Else" in watercolor and acrylic. All work shown is on 8.5 x 5.5 paper.
"Froggie Smiles". These are photographs. I'm looking forward to scanning so these look right. This is much darker than the actual painting. I'm working on the details of all these pieces. Once I have the colors in mind it doesn't take long to finish.
This last one was created for the sole purpose of testing out new paints. It's a paint pallet sheet. Sometimes when I just need to draw but there's nothing specific to do, I draw lines on paper this way and wait to use it later to test paint or clean brushes.
Fifteen days total but halfway through I began to lose myself to the constant and extreme pain. My medication cocktail sometimes caused me to see dragons and aliens. I'd been in intensive care for the bilateral pulmonary embolism and life threatening blood clots. I was about to begin a chapter of life I'll never forget, one that has left physical scars and emotional pain. What I've decided to do is express some of those experiences through art.
The first experience in multi media is called Three Birds.
Half way through ICU care I was losing it. The doctors worried I'd have to go on dialysis. My kidneys were shutting down, my heart was in trouble too. I was in trouble and I knew it so I asked my God, "Are you with me?" I needed to know if He knew his servant needed his comfort and approval....continue reading "Three Birds"
I got the apartment and move in Saturday! I already have the keys and lease.
I'm excited and a bit nervous, mostly excited. I have to figure out how to fit my stuff in this place. One thing I know is I'll have a 55 gallon aquarium in there! Somehow, some way, that aquarium WILL fit. I'm going to split it in half, half bedroom, half art studio w tea bar. I'll keep the doll collection in the bedroom area. I'm sure my little studio will feel like home in no time. ...continue reading "Saturday is moving day"
The last few days have been torture. I hurt from the top of my head to the soles of my feet. The amputation site is having an electric storm of shock and neuropathy. It's been a bad few days and I've done very little reaching out. I've just been waiting for medication time!
The foot that was amputated coincidentally was the foot with Chronic Reflex Sympathetic Dystrophy. Though amputated for other reasons, I hoped the RSD fire and pain would stop, it didn't and won't. It doesn't work that way. ...continue reading "Enduring the Days"
The Lesson is an art story about the doctor telling me about my blood system. He explained that something about my DNA steers my blood wrong. Instead of living the normal 120-90 days, my blood lives 60-30 days then begins to break down.
When the doctor told me this I thought to myself, I have bad blood, that's what makes me a bad person. This is why my mother can't love me, I'm bad from the inside out. Yup, my head took me there. So how do I rewrite a very old message of being bad and bring my thoughts more in line with the times? I paint and talk to myself.
After some healthy ground techniques I pulled out my watercolors and began to paint symbols from the doctor's visit. I painted a symbolic DNA strand and several levels of blood development.
I really enjoy painting like this. I take something medical and paint how it affected me emotionally. I'm going to keep doing this. Painting is healing for me and it allows me to process realities easier.
I apologize for the quality of the photo. All of this is still being painted, photographed and blogged from bed.
"The Lesson" by
Faith Magdalene Austin
Watercolor and ink
8.5 x 5.5
"The Unseen" is a painting by my 12 year old alter named Michelle who has been out quite a bit lately. She's doing therapy with Dr. D right now so there will surely be more art from her displayed on the blog.
The art piece was started by layering paint then smearing ink until she found an image she wanted to pull.
She prefers the 'dirty art' look and doesn't pay attention to if it's considered pretty. She layers faces and shadows, piling them one on the other in burnt orange, turquoise, black and a bit of white. There is also a large bird and an abstract tree that roots from the head of the main face.
Title: The Unseen (original art) Art by: Faith Magdalene Austin Media: Acrylic, ink on paper Size: 7 x 10 Finish: Signed, heat sealed, unmounted Style: Abstract Surreal
I was recently asked why I don't do larger art. I still do most creating, including this piece and small sewing projects, while in bed. My mattress is covered well so as not to look like a painters pallet. I've also got a nice little sewing box. Because so much time is spent in bed, I won't be able to complete large art projects. It's one of the things I had to accept awhile back. I do what I am capable of doing which means a lot is done in a way that accommodates Lupus and CRSD symptoms.
Even though my dog Clyde is on the bed with me as I paint, to date he has not been splattered with paint. He remains brown and white. 🙂
The original painting called, "The Unseen" is available through Etsy or PayPal.
She's just a little thing at 14 inches but she's got big brown eyes full of hope and a sweet little smile.
I let her eyes, smile and hair do all the talking for this doll. Her hair is really long and soft. Her lips are soft and pink and turned up just a little bit. She looks up to the sky in hope and wonder...and she finds it.
Her name is Gillian and she's currently in my Etsy shop waiting for her new home. You may also use PayPal, which ever is most convenient for you.
As you can see in the last photo in the gallery, I couldn't help myself. I had to hug her a little bit.... just a small snuggle.