Robert was going to allow the CNA from Zambia to return for a set period of time to see if we could overcome our fears, however, an opportunity to speak arose and we took it. I'm relieved to say that the woman who triggers us will not be returning.
It was difficult to tell them she can't come back because it feels like a failure on my part. But yet again, I can't get over it. I was beating myself up with guilt. It feels bad that I need yet another accommodation bc of my PTSD, but not as bad as letting her come here. ...continue reading "Speaking Up."
I felt ugly talking to Dr. D today. We talked about binge eating and how my diet isn't the best. I have a terrible sweet tooth but I also eat to sooth myself. I hope it counts for something that I didn't binge the other day. I'm not a fat slob failure but I certainly feel like one.
We talked about the amount of anxiety that I feel, still. This was going on before the medical event and has picked right back up. It's been difficult not to cut but I reluctantly admitted to scratching in order to relieve stress.
We talked about the hug from The Surgeon. He was surprised I liked the hug. I told him I get about 10 hugs every time I go to the Kingdom Hall. I like them. The hug from The Surgeon was healing, especially since I won't see him again. I like the spider plant starts I got from them, too. ...continue reading "Therapy Review: Ugly. Self Harm. Weight"
(sigh) I saw The Surgeon for the last time yesterday afternoon. I didn't expect him to hug me but I'm glad he did. I gave him his painting and as expected, I cried at the end. As a matter of fact I got in the car, went to the store, purchased 4 pints of ice cream and a dozen donuts to sooth those tears. Strawberry and Death by Chocolate seemed like good band-aides. I ate a few of the donuts but left the ice cream lot untouched in the freezer.......This is all so painfully unnatural.
I have a hard time letting go of him right now so I was given 3 spider plant starts from his office. How cool is that? His office is the one who gave me the push to set up my 3 gallon Betta 'bowl'. They've got a set up on each desk when you first walk in that are gorgeous. I so want to do a second Betta set up. Anyway.... ...continue reading "Surgeon. CNA. Spoiled Me."
My physical wounds have healed faster than emotional wounds. There's a real fear that time will pass, I'll 'look better', and people will forget that on the inside I'm still struggling.
When all this first happened and for the entire 5 months, friends leaped to my assistance. I had more visitors than I knew what to do with. 🙂 I felt loved. Now that things are going back to my version of normal with Lupus, I fear being left and yet I know the fear is unfounded. My friends love me and I know it, and I know that they were there for me before all this happened. But there's this fear that all the love and attention is going to stop, and I'll fade right into the background and be forgotten. I like the feeling of being loved. It's not entirely new but its new enough that with a taste of it I don't want to let it go. ...continue reading "Don’t Forget Me"
I understand that my biological response to many things is still as if my body is fighting like when I was abused or when I was having medical trauma from a young age. My adrenal system fights so hard, as if it has to, still. All that adrenaline causes anxiety because I'm still trying to run despite there being no where to run. I feel trapped in my anxiety.
I sometimes respond strong emotionally when I don't mean to.
Right now I'm feeling very stressed by things: stressed about the CNA situation and about not having frogs. I know it sounds so insane that I'd be stressed without frogs but I'm stressed without something to care for, fuss over and love. There's nothing here to love! ...continue reading "Anxiety and Fight or Flight"
It's been one of those days where all I've done is sleep and paint. I got in a good meal, sat down at the table with candle light and everything, yet my heart is desperate and forlorn.
I want to cut. I wont but the desire is there to shred my arms up.
When I don't paint I don't cope. Painting is a huge coping skill for me. Now that I've started painting again I've started feeling more. I felt a lot before but was sort of holding up a wall to shield myself from it. ...continue reading "I’m Not Crazy Yet"
The first CNA they sent me didn't work out. I'm not sure what the company was thinking. Here's the text sent to a friend who is still in the nursing home dealing with CNA's, nurses and roommates from hell.
"Oh Lord! My new CNA is 70 years old. I was like, what? Who sends a 70 year old woman to help a person in a wheelchair? It's her job so I'm not holding back. I have her act as my legs. I like her but I have a feeling she'll quit by winter. She says the laundry room from my apartment is too far to walk and the trash cans are so far they might as well be in a different zip code. lol My thought? Stop being a CNA BEFORE the age of 70 or don't complain about the distance you've got to walk. 70! They can't be serious. Thank goodness I know CPR. I may have to do it on her aged self after she gets back from the trash.
Update: They're sending me a younger CNA Monday morning, 8 am. We'll see how that goes. lol. The 70 yr old CNA and I talked frankly about her inability to handle my case. Crazy to send her to me."
You know what I always worry about? How will she feel about seeing my little nub, the amputation site? Will she be grossed out? Is it ugly to her? Am I ugly to her? The thought now is, it's not ugly, it just is what it is, but it's not ugly. I'm not ugly because I've had an amputation. Slowly, I've gone from ashamed of the amputation to 'just' being a bit self conscious. Lets hope that a CNA is used to seeing such things because I have such things. Then again, I'd hate to whip it out - Bamb! - then have her pass out on my floor. ...continue reading "CNA and Self Confidence"
I can't seem to get my head together. I'm physically and emotionally frayed. I've been trying my best all day to gather myself and settle my insides. I'm worried about my foot because it's split in a T shape in one spot then open in two other spots. The surgery was May 7th but with Lupus, healing has been compromised. We're back to treating the areas with honey.
I see the surgeon in October. I hope it's healed by then. In my head I fear disappointing him if it's not healed. Will he ask me why. What did I do to it? Did I neglect it? Why didn't I follow instructions? I did. I have followed instructions to the letter, even putting that horrid cocoa butter on myself despite hating the scent. I finished his painting, no problems there. I knew I'd knock it out because there was so much emotion involved. I could see the painting in my head. Perhaps the painting will ease other disappointments that my foot has yet to heal. ...continue reading "Disquieted Soul"
Tonight was services. I knew I wanted to go but I felt so ... less than. I looked at my hair, stroked it back and thought, this mop looks horrible. I can't go like this. I guess I could put it in a pony tail. I dragged my hands over my skirt and blouse and thought, this will have to do. Then I looked at my feet embarrassed and considered staying home. I have to get shoes to go with skirts but they have to be 1.5 foot friendly. These Converse with a skirt and the whole make up thing looks so stupid, but I really needed to be there with my spiritual family so I went on. I'm happy I did. Mop hair, decent clothing and tennis shoes didn't stop the friends from talking to me and hugging and smiling at me. I shook hands and got to talk to so many people. I'm happy I went.