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There's decent news to share in the way of an update I had this rash situation for 2 weeks, but w Lupus I didn't panic because Lupus throws rashes at you all the time. I'd been putting my thieves oil on it but it did nothing for the pain. That's why I went to the doctor, terrible pain. That's when I was told I have shingles.  Friday's appointment also told me I'm 2 weeks in to a 3 to 5 week endurance race. It hurts something fierce but I'm almost at half point when the virus will be shut down, dormant or whatever you want to call it. That's decent news. I'm not at the beginning and I'm no longer contagious.

I'll be on meds a bit longer and see my doc in 2 weeks.

List of foods not to eat when you have Shingles.
Did you know you're not supposed to eat chocolate when you have shingles? What? What kind of horrific disease do you have to have, to be told you can't eat chocolate? I mean seriously? It's insult to injury. If they'd said you can't have tea I would have laughed out loud. ...continue reading "Shingles: Decent news on Friday"

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I would say I've hit a rough patch but this is no patch, this is a field. Now I have to figure out how I'm going to traverse this ground with its pits and stones.

Today has been difficult but quiet, manageable. Anxiety is high, still, and my body hurts from head to toe. That's nothing new. Pain is as common as flowers. I feel it everywhere I turn but, being a few days out of the thick of depression means I see a little light ahead.

What a nightmare it's been. Today isn't. Today has been difficult but manageable. Yeah, I'm in my field of "flowers" and I'm a bit worn down, but I'm still here. I made it. I made it through that cycle of depression.

Faith

Broken Faces A lot of tea sipping, a lot of sleep, that's what's been going on over here.

Anxiety is very high as are my pain levels. I've got an open sore on my leg that hasn't healed in three weeks times so I have to get more treatment for it. That doesn't worry me though maybe it should. It's just that I've not been given any kind of off colored diagnosis so I'm like, it is what it is. I have Lupus, I don't heal well. It takes weeks to heal a simple wound. It would be nice if it didn't hurt so much but like I said, at this point it's just taking its own sweet time healing and hasn't morphed into something else. ...continue reading "Cuppa. Sleep. Work. I’m Better."

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I read to him the entry I wrote about being angry with him. I then assured him I will not lie to him about feeling suicidal or depressed. I need to trust him and he needs to trust me.

I cried from open to close of the session. It's been a hard day physically and emotionally. I had to take pain medication because of spasms in my legs and stomach. I tried to manage as long as I could without pain meds but after a bit it's reasonable to take a dose to ease things up. I also took some of my Passion Flower tincture to help ease anxiety associated with pain. I'm surprised I was able to stay awake for the session. ...continue reading "Therapy review: What I need to hear"

It's cold,
dead cold
freezing my bones in place.
bones that aren't, squeak and squawk
at the audacious request to carry me.

****
It's supposed to be bitter cold for the next 10 days. I just want the barometric pressure to stabilize, at least my pain would be tolerable. Right now my hands and knees are screaming.

This is year three that I've turned the heat on in the entire apartment instead of just using the heat settings in my room. I have baseboard heaters, not centralized heating with ventilation. These are like glorified space heaters for each room which is why the heating bill I just got is a whopping $107.00 for 650 sq feet. ...continue reading "Weather. Desensitization Therapy. Courage and Resilience."

The symptoms are quite intense. Nightmares, anxiety and deep despair are a lessor evil than pain so I went against medical advice and didn't reduce the amount of Lyrica I'm taking.

My first thought is to type, "I know its risky, but you don't understand," however many do. Many get that its difficult to make a good decision when all the choices can harm you. If I don't take a mix of medication with severe side effects, then I run the risk of losing my mind due to pain. If I take the mix of medication with severe side effects I run the risk of hurting myself if the side effects don't taper off. That is if the problem is Lyrica. I'll get to that later.

This is a catch 22 with the medication and I made a temporary decision to continue this treatment course with daily, in person, observation by three close friends who are not medical professionals. One friend a day will be here for the next two weeks. I have therapy 2x a week for the next two weeks. I've also got regular activities and volunteer work to perform so I'm covered as far as being observed and supported.

While being supported, I may be tearful, anxious or suicidal. I know that word suicide is a scary one but let me state clearly that living at this level of physical pain is slow murder. So I'm going to take a calculated risk beside a strong support team. ...continue reading "Lyrica – Against Medical Advice"

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He said I'm just a ball of pain and that I need to stop blowing steam at him. I stopped, looked at him and said, Did you just tell me to stop telling you I'm in pain. He said, yes, because its nonsense. Then he said, "I'm just telling it like it is. I shoot from the hip." I pointed to the nearly 40 frames on one wall having to do with his military career and congressional awards and I said, "You're a soldier, are you?" I said, "Some people aren't soldiers. Some people don't shoot from the hip or like being shot at, at all." I explained that if he didn't believe me then that's one thing, but to say, "stop blowing that steam" and tell me I'm speaking nonsense isn't an acceptable way to speak to me. ...continue reading "Neurology appointment. I’m not a soldier."

I should call this entry, the big baby has pizza and now she's happy. It's comfort food. Pizza is my comfort food. It's in the oven now, bubbling with my herb blend, fresh garlic, three cheeses and two meats in a cast iron skillet. I'm gonna slice up a huge portion of self soothing.

Also in the 'this is a healing thing' category is the response I got concerning the last doll I made and adopted out. I smiled through the entire email. That really made me happy.

I am teetering and I know it. I've decided not to fight it. Maybe it won't last as long if I'm not trying to fight against an inevitable break.  Spasms and new medication as well as grief has pushed me further than I needed to go and I can see that plainly. If I can't stop this train from hitting the wall at least I can pad the wall. I can brace properly so the impact isn't as devastating. I can prepare by getting my emotional emergency gear in place. There will be pizza. There will be pepperoni, quality pepperoni, sweet Italian sausage and several kinds of cheese. There will be art supplies on the ready and a list of ways to keep myself healthiest.

This time of cracking up includes Clyde which is a good thing because I don't have to do this alone. Nights can get so hard, and long.

My pizza sauce has caraway seeds and rosemary so that it tastes similar to Pizza Hut. The crust has a bit of corn meal in it which crisps up quite nicely in a well oiled cast iron skillet. I bake the crust first then add the toppings. Most of the sauce is served on the side so that the crust doesn't get too soggy.

Jordan

It's been difficult physically and emotionally over this way. I'm struggling to keep sanity it feels like. I feel like I'm on the edge of it. Between my body and nightmares, I'm just exhausted.

I'm hungry. There's plenty of food to eat but nothing I really want. I just want to sleep off the yuck. What I want is pizza but I don't want to have to cook it myself. I'm being such a baby.

In therapy today, over the phone, we talked about Michelle who is 15 years old. She really enjoys walking the dog. I also found out she likes our scarves quite a bit, especially the orange ones. There are 5 orange scarves here, lol. They're added to our coat or jacket and don't make us look anything like the green lady from Brooklyn we saw online today. ...continue reading "Difficult days. Killers and mothers. A mess of topics."

Today was another day where I had spasms. The pain gets so bad it frightens me. I want to run from it.

There's loneliness with pain. I'm not sure why but it's a lonely feeling to be in pain like that. It's even more odd when it's over and I'm out walking the dog as if nothing happened. It's strange. I mean, I slept hard after it but when I woke I got up and walked the dog as if I hadn't, hours before, gotten too close to crossing the line between sane and insane. I feel like I'll lose my mind.  ...continue reading "Bad Day – We Make A Good Team"

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