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I stood twice then transfered to the toilet on my own. I needed help with getting back in the chair and getting my brief on. I transfered to bed on my own, exhausted, discouraged a bit. But it's early, right? It was only the 7th that I had surgery.

The CNA asked me if I would have to pay full price for a pedicure. We both laughed. ☺ The child is sick. Lol

I felt very "disabled". There I was stranded on the toilet stark naked except for the depends hanging low and left. Obviously I could take the victory in all this but I can see what all it took to wrestle w the hospital gown and lose the battle leaving me butt naked like a toddler on a potty chair. I got it in the right spot, and on time. What am I, two?

Every minute counts because every minute is energy to complete a task. If I miscalculate and overestimate, then I'm screwed. This is where humility comes in. Accept the limitation or pay the consequence.

Today I counted right. Today I can be irritated and I can laugh at myself.

When I realized I'd need help getting back in the chair I laughed at myself because I was stranded on the toilet. Go figure. I knew I could get back in the chair but I couldn't manage the brief, get dressed and wash my hands. So I pulled the "Help Me" call light and waited. I told her what I had energy for and what I needed help with. A few min later I was successfully back in bed.

It's an ordeal, a math lesson, a test of humility. It's a reminder of what can be taken for granted and of the times we have to let go.

Good things that happen this week
First and foremost, thank you for letting me survive the surgery. I was scared.
Thank you for all the friends that showed up.
Thank you for good sleep and times where I was able to cry and release grief.
Thank you for reminders to see the bigger picture, see beyond this moment and know that both now and the future matter.
Thank you for humor with friends and nursing staff. We had a hilarious time tasting guava fruit. It was fresh but not ripe, and very nasty but funny to see the facial expressions because of the tart taste.
Thanks for strong pain medication that keeps most of the really bad pain at bay.

Faith

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After another fall I had to go to the hospital. I was there most of the day. I've hurt my back and require in home care for a few days so tomorrow a friend will come to stay with me and Clyde.

There's degeneration where I hit which means I smacked an already damaged area. Man that hurt. Clyde was right beside me the whole time. I was in the house when I fell.

I was given 2 shots for pain but my body ate it up, didn't do much.

...continue reading "Hospital Visit"

I'm no longer sleeping the way I was and the med side effects are starting to get better.

I got what I asked for, a reprieve from menopausal symptoms while managing shingles. I should see a start up of symptoms in the next few days but I did get almost two weeks of relief that I so very much needed. The Black Cohosh has been increased a third time with the hope that there will be less depression and more functionality. Anxiety related to PTSD has been through the roof but the other stuff is calming down.

Faith

 

Still sleeping and recovering. Tuesday morning I went for treatment but here we are Thursday evening and I'm still exhausted. My pain levels are back to 7-8. My appetite is still gone.

Clyde has been beside me the last few days which has been helpful. Despite sleeping so much, I get up by alarm 4x a day to take him outside. Today we played ball briefly.

I'd describe my mood as baseline. No suicidal issues and no self harm. Anxiety is high and being managed. I'm still on reprieve from perimenopause symptoms. I'm typing in bed but I'll soon return to the laptop.

Faith

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Again, this is not a rough patch, it's a field w pits and quicksand. It's a field where pain is as common as flowers.

I've had another small emergency doctor visit bc my pain has been too high for too long. Between Lupus, CRSD and shingles, my threshold was met quickly.

When the pain stays high like that I go in w/o a second thought. I used to feel bad for needing to be given pain treatment but they know me and treat me well. They don't act like I'm just there to get high.

I'm home now and somewhat tired but my mood is ok. Interestingly enough, I now have to try to deal with the pain meds. It's not like dealing with the pain, but there are issues related to that type of pain medication in my body. At the moment there's relief from what I was feeling so I won't complain too much. 

Faith

Broken Faces A lot of tea sipping, a lot of sleep, that's what's been going on over here.

Anxiety is very high as are my pain levels. I've got an open sore on my leg that hasn't healed in three weeks times so I have to get more treatment for it. That doesn't worry me though maybe it should. It's just that I've not been given any kind of off colored diagnosis so I'm like, it is what it is. I have Lupus, I don't heal well. It takes weeks to heal a simple wound. It would be nice if it didn't hurt so much but like I said, at this point it's just taking its own sweet time healing and hasn't morphed into something else. ...continue reading "Cuppa. Sleep. Work. I’m Better."

It's cold,
dead cold
freezing my bones in place.
bones that aren't, squeak and squawk
at the audacious request to carry me.

****
It's supposed to be bitter cold for the next 10 days. I just want the barometric pressure to stabilize, at least my pain would be tolerable. Right now my hands and knees are screaming.

This is year three that I've turned the heat on in the entire apartment instead of just using the heat settings in my room. I have baseboard heaters, not centralized heating with ventilation. These are like glorified space heaters for each room which is why the heating bill I just got is a whopping $107.00 for 650 sq feet. ...continue reading "Weather. Desensitization Therapy. Courage and Resilience."

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The medical doctor suggested that Gabapentin withdrawal, not Lyrica is the culprit and that perimenopause is also playing a part in this emotional and medical crisis. She made some suggestions to improve the terrible mood swings such as Dong quai and Black cohosh. The University of Maryland explains why I chose to use Black cohosh despite possible weight gain. Again, I've chosen the lesser of two evils.

When asked why I didn't lower the dose of Lyrica when it was originally thought to be a problem, I told her, at this point I'm more afraid of the pain than of my mind. ...continue reading "Depression. Suicide. Medication. Perimenopause."

The symptoms are quite intense. Nightmares, anxiety and deep despair are a lessor evil than pain so I went against medical advice and didn't reduce the amount of Lyrica I'm taking.

My first thought is to type, "I know its risky, but you don't understand," however many do. Many get that its difficult to make a good decision when all the choices can harm you. If I don't take a mix of medication with severe side effects, then I run the risk of losing my mind due to pain. If I take the mix of medication with severe side effects I run the risk of hurting myself if the side effects don't taper off. That is if the problem is Lyrica. I'll get to that later.

This is a catch 22 with the medication and I made a temporary decision to continue this treatment course with daily, in person, observation by three close friends who are not medical professionals. One friend a day will be here for the next two weeks. I have therapy 2x a week for the next two weeks. I've also got regular activities and volunteer work to perform so I'm covered as far as being observed and supported.

While being supported, I may be tearful, anxious or suicidal. I know that word suicide is a scary one but let me state clearly that living at this level of physical pain is slow murder. So I'm going to take a calculated risk beside a strong support team. ...continue reading "Lyrica – Against Medical Advice"

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He said I'm just a ball of pain and that I need to stop blowing steam at him. I stopped, looked at him and said, Did you just tell me to stop telling you I'm in pain. He said, yes, because its nonsense. Then he said, "I'm just telling it like it is. I shoot from the hip." I pointed to the nearly 40 frames on one wall having to do with his military career and congressional awards and I said, "You're a soldier, are you?" I said, "Some people aren't soldiers. Some people don't shoot from the hip or like being shot at, at all." I explained that if he didn't believe me then that's one thing, but to say, "stop blowing that steam" and tell me I'm speaking nonsense isn't an acceptable way to speak to me. ...continue reading "Neurology appointment. I’m not a soldier."

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