In my therapy session today we talked about the dream I had just before he called. In the dream I was 47 but in the 2nd grade. I sat as an adult in South Korea with second grade children in class. The teacher taught evolution but one student spoke up to the teacher and class about why Jehovah's Witnesses believe in Creation. I offered a few supporting comments but it was hard to concentrate because the stereotypical shoes they gave me to wear were a podiatry nightmare. You could tell the American students from others because we were hopping like bunnies in the shoes. (hey don't judge lol lol it was just a dream. lol)
In a different dream I was sleeping next to my mother in bed as an adult. The bed was out in the open, in the middle of a town fair. There was a band, baton girls, food stalls and of course football because this is after all the Midwest. So we were sleeping on her stripped bed, nothing but a mattress. It was the same mattress from my childhood that she abused my family on. So she and I slept. My back was to her when she put her arm around me in a very loving, motherly way. I wanted it to be safe and allowed it. Finally I relaxed enough to feel a mother-daughter connection with her. It felt good. Then she realized she was cold because I hogged all the covers. ...continue reading "Therapy Review : Love Me"
Saturday at 2pm I'll move to the new place. I'm excited but I won't have the internet for a few days. In the few days off line I hope to set up my art table and supplies. I need to see my belongings again. It'll mean a lot to see my stuff. It's hard to explain why I look forward to seeing gadgets and odds and ends, but I do. Part of the things that were thrown away for various reasons, were all of my bound books, including my Shakespeare collection, Maya Angelou book and poetry collections as well as my cookbooks, some of which I had for 20 years.
They say 'things' can be replaced but they forget to add that we will mourn these 'things' for awhile. All my dried flowers, including sunflowers were tossed by the person who cleaned out my apartment while I was down. Every dried rose I have is gone. It hurts. I have every last one of my dolls and every single piece of jewelry, every leaf of tea and every single piece of artwork and art supplies. Those items are sacred. I feel like my poetry collection fell in the category of sacred, but l wasn't there to say so. ...continue reading "The Move"
Fifteen days total but halfway through I began to lose myself to the constant and extreme pain. My medication cocktail sometimes caused me to see dragons and aliens. I'd been in intensive care for the bilateral pulmonary embolism and life threatening blood clots. I was about to begin a chapter of life I'll never forget, one that has left physical scars and emotional pain. What I've decided to do is express some of those experiences through art.
The first experience in multi media is called Three Birds.
Half way through ICU care I was losing it. The doctors worried I'd have to go on dialysis. My kidneys were shutting down, my heart was in trouble too. I was in trouble and I knew it so I asked my God, "Are you with me?" I needed to know if He knew his servant needed his comfort and approval....continue reading "Three Birds"
I've gotten a hold of all the paperwork I need to apply for the wheelchair accessible apartment! I have everything I need! Oh I can't wait to have my own place again. Since this started I've had zero personal space either physically or environmentally. People touch and prod, observe and examine, when and where they like. And they've done it since February when the train wreck began. So now after 5 months of living in a hospital with 2 months of that 5 in a nursing home, I will have night time privacy.
The last few days have been torture. I hurt from the top of my head to the soles of my feet. The amputation site is having an electric storm of shock and neuropathy. It's been a bad few days and I've done very little reaching out. I've just been waiting for medication time!
The foot that was amputated coincidentally was the foot with Chronic Reflex Sympathetic Dystrophy. Though amputated for other reasons, I hoped the RSD fire and pain would stop, it didn't and won't. It doesn't work that way. ...continue reading "Enduring the Days"
I asked you to do the surgery. You said you could or a colleague but I trusted my life in your hands. It felt like there was so much at stake, more to lose than body parts. I can't explain how afraid I was that I'd throw a blood clot or bleed to death. I was so scared I kept calling to my mother!
I had a dream about her last night. She was a helpless infant in my arms. I rolled around in my wheelchair with her head on my shoulder. I made sure she was safe and warm. Safe. ...continue reading "Not Cut and Dry"
I'm not brave. I'm not. I'm not rolling with the punches, I'm just getting punched. As I said, I've walked through the fire and I'm all burned up. I'm skinny, starving for a moment of real rest, of relief. ...continue reading "The Brave Face"
I see "the surgeon" tomorrow, the one who amputated my toes. I wonder what kind of person it takes to look at a foot rotted black, take a saw and hack off a body part to be thrown away? What allows his mind to go there and his hands to follow? Though beyond repair, black as night, shriveled to nothing and dry, they were still mine.
My heart knows 100% that this surgeon was one who helped save my life, mine and many others. He is loved and honored, rightfully put on a pedestal. He has taken people with slim odds and brought them back from the brink. In my heart I see him that way, but behind my eyes I see the man who methodically removed part of me and threw me away.
12 painful stairs to a tiny room. Each step felt like I couldn't cry any more than I did one step earlier. I made it up the stairs and laid on the air mattress with a slow leak and asked myself, "is it worth it?" can't I just stop taking meds and let nature take its course in a matter of days? Then the real me took a breath! I was reminded that this is very temporary. I'm with friends who, though of humble means truly love me. And honestly, I'd rather be here than in a nursing home with workers who like me but who don't do half of what they should. ...continue reading "A difficult start"
That's joy on my face. Walking brings joy to my face. I did 125 feet today. Another goal met was to begin giving myself the Arixtra blood thinner shot, which I take once daily.
Next week we will work on stamina issues. I'll begin learning to balance myself climbing the stairs. I'm going to need to practice the stairs because when I leave here I'm going to stay with friends who have a room for me upstairs. I won't brave them alone. Hopefully nursing staff will be in place so that CNA's can assist with getting up and down. Yup, the stairs are a bit worrying but I've got a bit to figure it out. I may scoot on my bum while on the stairs. We'll see. The good news is, even though I don't yet have an apartment, I do have a safe, clean place to stay. ...continue reading "Victory Laps and Wobbly Steps"