The problem with going to the hospital is that I was just there! I mean seriously, are they keeping a room open just for me now?
Yeah, I'm delaying. I'm trying to enjoy a few more moments outside the hospital. I just want a little more time b4 needles, prodding and more medications. It's been months since someone asked that intrusive question, "When is the last time your bowels moved?" Every dang day they asked me that. I know I was on some serious pain killers that could shut down my bowel, but the question is intrusive. There is no such thing as privacy in the hospital. No quiet. Just sickness. Depressing.
My left leg is very painful. I try to ignore it and do other things. My breathing isn't normal. All I can do is shake my head.
Here we go again. That's what I keep thinking, here we go again! I don't want to.
Tomorrow I see Dr D in his office. I want to see him b4 I go in just in case I'm in for more than a few days.
Robert was going to allow the CNA from Zambia to return for a set period of time to see if we could overcome our fears, however, an opportunity to speak arose and we took it. I'm relieved to say that the woman who triggers us will not be returning.
It was difficult to tell them she can't come back because it feels like a failure on my part. But yet again, I can't get over it. I was beating myself up with guilt. It feels bad that I need yet another accommodation bc of my PTSD, but not as bad as letting her come here. ...continue reading "Speaking Up."
Dr. D and I discussed the recent firing of my new CNA. I fired her for several reasons and fired the company, too.
My insurance covers a CNA that can take me to the store and to doctor appointments. It turns out this CNA was driving me around w/o a drivers license or insurance. I called the company and they shocked the crap out of me when they said they hire people to drive even when they have only a hardship license. This girl had that when she was hired but let it drop because she couldn't pay for it. Still she took me to the store! When I called the company with my concerns the CNA decided to call me and curse me out!!! Obviously she can't return to my home after that. ...continue reading "Therapy Review: Lowered Expectations and Less Stress"
I felt ugly talking to Dr. D today. We talked about binge eating and how my diet isn't the best. I have a terrible sweet tooth but I also eat to sooth myself. I hope it counts for something that I didn't binge the other day. I'm not a fat slob failure but I certainly feel like one.
We talked about the amount of anxiety that I feel, still. This was going on before the medical event and has picked right back up. It's been difficult not to cut but I reluctantly admitted to scratching in order to relieve stress.
We talked about the hug from The Surgeon. He was surprised I liked the hug. I told him I get about 10 hugs every time I go to the Kingdom Hall. I like them. The hug from The Surgeon was healing, especially since I won't see him again. I like the spider plant starts I got from them, too. ...continue reading "Therapy Review: Ugly. Self Harm. Weight"
My physical wounds have healed faster than emotional wounds. There's a real fear that time will pass, I'll 'look better', and people will forget that on the inside I'm still struggling.
When all this first happened and for the entire 5 months, friends leaped to my assistance. I had more visitors than I knew what to do with. 🙂 I felt loved. Now that things are going back to my version of normal with Lupus, I fear being left and yet I know the fear is unfounded. My friends love me and I know it, and I know that they were there for me before all this happened. But there's this fear that all the love and attention is going to stop, and I'll fade right into the background and be forgotten. I like the feeling of being loved. It's not entirely new but its new enough that with a taste of it I don't want to let it go. ...continue reading "Don’t Forget Me"
Content: Aunt tried to kill herself. Brief discussion of cocaine. Death.
The gist is that my aunt refused to call me by my name, called me everything else. I refused to answer. Then she called me a 'bitch' so I gave her a full account of how much I hate her. I reminded her that she has "everything" others work their whole lives for: a boat, house, vacations, good job, yet she's unhappy. I went as far as to tell her that even though everyone else knows it, she's in love with someone who doesn't love her back and that's the real reason she's unhappy. I said she should let his gay self go and find a straight man. ...continue reading "Dreams: Burying Fantasies"
I understand that my biological response to many things is still as if my body is fighting like when I was abused or when I was having medical trauma from a young age. My adrenal system fights so hard, as if it has to, still. All that adrenaline causes anxiety because I'm still trying to run despite there being no where to run. I feel trapped in my anxiety.
I sometimes respond strong emotionally when I don't mean to.
Right now I'm feeling very stressed by things: stressed about the CNA situation and about not having frogs. I know it sounds so insane that I'd be stressed without frogs but I'm stressed without something to care for, fuss over and love. There's nothing here to love! ...continue reading "Anxiety and Fight or Flight"
It's been one of those days where all I've done is sleep and paint. I got in a good meal, sat down at the table with candle light and everything, yet my heart is desperate and forlorn.
I want to cut. I wont but the desire is there to shred my arms up.
When I don't paint I don't cope. Painting is a huge coping skill for me. Now that I've started painting again I've started feeling more. I felt a lot before but was sort of holding up a wall to shield myself from it. ...continue reading "I’m Not Crazy Yet"
It was a packed session. We started off talking about what took place in the hospital yesterday. I was given news that should have made me happy but I can't seem to trust it. I'm still 'stage four' Lupus with issues associated with my kidneys and vascular system but the medications are working very well and have stabilized me. I have no new blood clots. I still have a lot of nerve damage but I can walk and that is something they weren't positive would happen. There's still a long way to go with my nerves healing which means I hurt quite a bit, but I am stable and out of the woods.
I told Big E, my Oncologist, that I want to be happy about the news but I'm still shell shocked. I said, it was the hardest thing I've ever had to do. He said, I know, I was there. When he said that I wanted to cry. I was so happy he said it. He was there, every single solitary day for three months he showed up by my bedside. Week days and weekends Big E was in my room checking on me, three months straight! ...continue reading "Therapy Review: Stability. Forgiveness. Gratitude."
In my therapy session today we talked about the dream I had just before he called. In the dream I was 47 but in the 2nd grade. I sat as an adult in South Korea with second grade children in class. The teacher taught evolution but one student spoke up to the teacher and class about why Jehovah's Witnesses believe in Creation. I offered a few supporting comments but it was hard to concentrate because the stereotypical shoes they gave me to wear were a podiatry nightmare. You could tell the American students from others because we were hopping like bunnies in the shoes. (hey don't judge lol lol it was just a dream. lol)
In a different dream I was sleeping next to my mother in bed as an adult. The bed was out in the open, in the middle of a town fair. There was a band, baton girls, food stalls and of course football because this is after all the Midwest. So we were sleeping on her stripped bed, nothing but a mattress. It was the same mattress from my childhood that she abused my family on. So she and I slept. My back was to her when she put her arm around me in a very loving, motherly way. I wanted it to be safe and allowed it. Finally I relaxed enough to feel a mother-daughter connection with her. It felt good. Then she realized she was cold because I hogged all the covers. ...continue reading "Therapy Review : Love Me"