I’m not crazy, I have Fibromyalgia

Tactile allodynia – It hurts to be touched, my clothing hurts, my skin burns, the light on my skin is painful, the wind blowing too hard on my skin is painful. Wet hair, a pat on the back, a soft rub from the cat…painful. It seemed almost too much to have anyone believe but in one article these issues were validated. This article also talks about how to get dressed when you have Fibro. Yup, there’s a certain way to do it that won’t increase your pain.

Painful to Touch: Fibromyalgia & Tactile Allodynia

Here are 60+ symptoms of FMS that may help validate others who have experiences that seem unrelated to the disorder but that they experience ongoing. The ones that surprised me are:

  1. Sleep starts (falling sensations)
  2. Difficulty speaking known words, other language impairments (dysphasia)
  3. Loss of ability to distinguish some shades of colors
  4. Free-floating anxiety (not associated with situation or object)
  5. Sensitivity to pressure changes, temperature & humidity

The main one though that stood out for me is “Delayed reactions to physical exertion or stressful events”. I’ve put it in those words. I’ve said its like I have a delayed reaction. I could never explain that delayed reaction thing. I’m so ‘pleased’ to see it there. Reading lists like this helps me feel like I have a reason, a valid, proven, other people have this REASON for being forgetful, for not remembering my words, for stumbling around like I’m drunk and for feeling generalized anxiety. I’m not crazy, I have Fibromyalgia.


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