I guess it was inevitable. I showed up to the hospital, a building full of sick people, and caught some sort of bug. I’m hanging out at home with the cat.
Jane sits and watches TV. I want to tell her, “don’t sit so close, it’ll destroy your eyes”. Besides, I can’t see around her fur. The little film is about King Hezekiah. It’s one of my favorites. I watched a few James Stewart black and whites but she prefers Hezekiah.
Here she sits in a not so pretty photo of me, but I did say I’m sick. She hasn’t left my side. Despite the constant flash of the phone camera, she keeps on earning her keep and the first place in my heart.
Right now I’m sort of trying to wrap my head around news from the doctors. They’re shuffling diagnosis, adding and removing. I’m not pleased with it. I don’t have Fibromyalgia, I have RSD with pain traveling to the left shoulder in the same way it was on the right. I don’t know much about RSD at all.
What they are now saying is the cause of my severe nerve pain answer questions that stumped many. Giving me a few extra letters validated me on several issues but I remain bruised by the time that passed when they didn’t believe me. I feel like they should have seen it or heard me 3 years ago when I began telling them that the pain I have is severe enough that at times I can’t be touched. When I am touched it has to be pressure, light touch is excruciating. People have seen me pass out because of the pain. I’ve given the same symptoms for years with doctors and nurses saying, “it can’t hurt that badly”.
So yeah, they might have the new diagnosis right,
but it still angers me that I wasn’t listened to,
that they me untreated far too long.
Forgive me if I’m not jumping for joy
now that they say they have the right letters
to add to my collection of disorders.
We Have Lupus board
RSD is a chronic pain condition that is believed to be the result of dysfunction in the central or peripheral nervous systems. Some believe that Lupus can cause RSD because Lupus is known to damage and/or cause dysfunction in the CNS. RSD causes irritation and abnormal excitation of nervous tissue, leading to abnormal impulses along the nerves that affect blood vessels and skin. It is also believed that RSD, if follwed by an injury of some type, is caused by triggering an immune response and symptoms associated with inflammation (redness, warmth, swelling): Sounds a bit like Lupus doesn’t it??? Like Lupus, RSD is not thought to have a single cause, but rather multiple causes producing similar symptoms.
Part of the treatment for RSD includes Corticosteroids (drugs that can quickly reduce inflammation and pain). As with many Lupus symptoms, t treatment for RSD focuses on relieving painful symptoms. Here are some of the standard treatment options:
psychotherapy to relieve stress, anxiety, and depression
sympathetic nerve blocks
surgery including sympathectomy (considered controversial)
spinal cord stimulation
intrathecal drug pumps