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Art Chronic Pain Dreams Lupus The People Behind My Eyes Therapy Review

DREAM : The Mouth of Lions

A man kept a house with several women tied up with chains. Some he broke so that they didn’t try to run. He kept a lion that he fed live humans. It was the largest beast I’d ever seen. I and another woman were caught as prey. We were in a container waiting to be […]

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Lupus The People Behind My Eyes

Nursing Home Stay Begins

I got word that I’d transport to the nursing home around 5:30pm yesterday. I was nervous, not sure what to expect. I got here and was very surprised to see it as nice as the virtual tour I took. They even had dinner ready for me which turned out to be very good. I’ve eaten […]

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Lupus The People Behind My Eyes

I would have said, “Full speed ahead”

Surgeons, Doctors and Nurses make decisions for me based on their expertise. I depend on their knowledge and background to assist me during this difficult time in my life. During my hospital stay, I’ve had to give confidence to Physical Therapists as well and accept that decisions w my care will be for my best […]

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Lupus PTSD The People Behind My Eyes

Change. The unknown. Chew.

I hate Lupus. Lupus is the devil. I talked to Dr D over the phone for my session. We talked about the emotional toll of this hospitalization. We talked about how things change so fast sometimes that it’s hard to keep up. There’s a revolving door of changes. I can hardly keep up. Many changes […]

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Lupus The People Behind My Eyes

Alive and kicking

Boyah! Alive and kicking. La, la la la la Sing until your love is, love is ALIVE and kicking. .. Gracious! Gracious! I’m ok. I’ll be ok. There’s some serious therapy to do, and for a long time in the hospital…. I panicked. I cried and called for my mother like a little girl. I […]

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Lupus The People Behind My Eyes

My Verizon

Several doctors have teamed up to manage my hemaglobin nightmare. I’ve seen top physicians, stars in their field. One such star reminds me of the guy from the Verizon commercial. When he came in he exuded confidence. I knew I was in good hands. I thought about how young he seems, about personal sacrifices he may […]

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Abuse Anxiety Lupus PTSD The People Behind My Eyes

Healing by necessity and vulnerability

I am not one who can handle a lot of physical stimulation. I didn’t want to be touched. Movement and sound scare me. However, in a vulnerable state I have had to allow things to happen even if I didn’t think I could handle it. Since being at the hospital I’ve allowed people who resemble […]

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Lupus The People Behind My Eyes

Surgery 2 and life pages turned

I’ve been in the hospital since mid February, a month now . I’ve been part of something profound and I know it. I will talk about it in depth at another time. I’m not really able to blog through this right now but there is a lot to say concerning surgery one. Blogging while in […]

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I'm only human Lupus The People Behind My Eyes

It’s Faith, with smiles

Hello I’m writing to you 12 days long in the ICU in an Indianapolis hospital. As you know I’ve had a pulmonary embolism, not my first. My body is full of blood clots and I’m not doing well. If I survive the blood clots I am at risk of losing toes. I’ve seen them, black, […]