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Art

Bears and Tea

Bears on the bed Tea by the window My room has changed again. I’m back in the rehab area instead of the nursing home or long-term care section. I was here when I first arrived and it’s good to be back. I am not good with change but this here was needed because I was […]

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Chronic Pain Lupus The People Behind My Eyes

Try

I’m going to be in the hospital for a few days. Despite being on blood thinners my body has still created a blood clot behind my knee. There’s an abnormality in the left lung but I’m not sure what that means, if anything at all. When the doctor gave me all the information and options, […]

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Lupus Major Depression The People Behind My Eyes

For Granted

I take life for granted until I go head first into a moment that tangles with sobriety. My eyes are wide open to how fragile people are and how they too live life blinded, until they absolutely have to see. I’ve got another blood clot situation. My fear is that it’ll threaten the left leg. […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain I'm only human Lupus The People Behind My Eyes

Disabled Days

I stood twice then transfered to the toilet on my own. I needed help with getting back in the chair and getting my brief on. I transfered to bed on my own, exhausted, discouraged a bit. But it’s early, right? It was only the 7th that I had surgery. The CNA asked me if I […]

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Art

Therapy Review : The final go around

Dr D and I talked at our regular time. I said I’m hungry but nothing sounds good. I said for several days I’ve not been myself. I yelled and cursed, complained and refused their assistance. I wanted to be left alone to sleep. The pain was out of control and I couldn’t stand it. A […]

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The People Behind My Eyes

First Nights Home

I was heavily drugged as the physical therapist rolled me down to hallway. I haven’t been myself or close to it. I’m terrified of the pain and wonder what’s going to happen to me. There’s also a part of me that feels sure and doesn’t question herself as much. My environment doesn’t feel as secure […]

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Art

Phone and email

There are a few issues with phone calls, texting and emails. I also struggle to get Sundrip or any other web site to load. I’m working on the problems so I can correspond again.

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Art

Surgery Completed

The surgery was completed but we’re having difficulty with the wound vac. I’m ok. I just need rest. Faith

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Art Art therapy Chronic Pain Originals Paintings Sketchbook diary Surreal The People Behind My Eyes

The Lesson

The Lesson is an art story about the doctor telling me about my blood system. He explained that something about my DNA steers my blood wrong. Instead of living the normal 120-90 days, my blood lives 60-30 days then begins to break down. When the doctor told me this I thought to myself, I have […]

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Anxiety Chronic Pain I'm only human Lupus The People Behind My Eyes

On losing more

I’m trying not to let it eat me up. I know it’ll be difficult and emotionally painful, but I don’t want it to rule me. It’s funny, I picture myself dancing again. I picture myself bending down to pick up moss, walking through grass down to the water line. I can see myself functioning w […]