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PTSD The People Behind My Eyes

CNA: Inappropriate Behavior

I talked to Dr D about this as well as my nurse. Both were quite shocked by it. My current CNA has been showing up for work. She does good work, learns quickly, doesn’t burn my food or anything like that. As a matter of fact, she cooks pretty well. Friday I was sitting at […]

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Chronic Pain Lupus PTSD The People Behind My Eyes

Emotional Exhaustion

It’s nearly 11pm. I’m still up thinking. I feel so desperate and depleted and tattered. Yes, I’m relieved I don’t have to do another surgery and I’m relieved that there’s no bone infection, but I’m also exhausted from the fight. Exhausted from keeping my head up as I tread the waters of chronic illness and […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

No Osteomyelitis. Chronic illness is expensive.

I was tested twice more and the final answer is no. I don’t have a bone infection. No Osteomyelitis. The infection from the ulcer reached deep, but the bone wasn’t infected at all. I’m in the clear on that one. Also, after 2 months and much fuss, the ulcer is nearly gone. I’m not even […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain I'm only human Lupus PTSD The People Behind My Eyes

The Smile

I smiled every time the doctor or nurse walked in the room. I smiled at the Radiologist, Podiatrist, Hematologist, Wound Team and the vampire, blood sucking Phlebotomist. I’m not an easy stick and hate getting my blood drawn, thus the name calling. Anyway, I smiled at them all, genuinely, because I was greatful for good […]

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(CRSD) Reflex Sympathetic Dystrophy Lupus The People Behind My Eyes

Back from the hospital

I’m home now. What a scare. My foot is infected again. I went to the hospital and was admitted for 3 days. The wound turned black and scared everyone to death. I was originally diagnosed with a bone infection but the surgeon that amputated my foot as well as his partner disagree with that diagnosis. […]