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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

The Pointless ER Visit

Well then, I guess even the ER is refusing real pain therapies to people with documented Lupus and Chronic Regional Sympathetic Dystrophy (CRSD). I showed up at a sustained level 9 pain with my foot and leg messed up only to be given a line of crap and some Tylenol. Uh huh, Tylenol! I cried. I just broke down and cried.

I was given a shot of medication that is a little stronger than Ibuprofen which took the edge off the pain enough to let me fall asleep.

At the ER I was told that 1 out of 10 people given opioids will get addicted. This also means that 9 out of 10 will NOT!

Interestingly enough, they suggested I go to a clinic that might give me a pain pump that delivers a small amount of opioids directly to my spinal cord so as to help the pain and give me fewer opioids than by mouth. In other words, they want to do an invasive procedure, insert something in my body. I hit a button and get the SAME meds they’re afraid to give by mouth. No! Absolutely not. Nothing in the spinal area for me. If I can’t get injections in the spine for fear or blood clots, why would I get a dang insert, something I’m going to leave there? Nope!

This is again the medical community not thinking. You gave everyone pain meds, now you want to give everyone injections or a pain pump only to tell us 5 yrs from now that it had unforseen side effects. The problem is the fact that they’re treating people the same way instead of individually. Everyone gets opioids. No, everyone gets shots and pumps.

I’m frustrated and angry.

I told them Im not sleeping so the doctor said to take Benadryl. She wrote me a script for 14 pills which I already had at home.

The trip was pointless and ended with a blast of anger when the doctor said to return if the pain continues. I said WHY? I said I can get no relief at home without waiting 2 hours in the waiting room!

Some friends picked me up and brought me home. I’m under the weighted blanket w lavender going in the diffuser to help with anxiety. Also helpful is my kitty cat Joe who has given extra love and cuddles.

Joe
Frog pile

Faith

3 replies on “The Pointless ER Visit”

Hugs. This sucks. It was the mismarketing of things like fentanyl to those who were not chronic pain patients by unscrupulous pharma CEOs who later pled guilty that really caused the crisis. Why chronic pain patients still have to suffer for their evil capitalism post conviction, I don’t know.

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