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ChronicFor awhile now I've considered wearing a sign on my upper body vest that requests that people please not touch me. I've worn the vest for maybe a year now and I'm comfortable doing so.  Some people look at me like I'm a terrorist, others are bold enough to ask why I'm wearing the vest. Some mistake me for a policeman (stares blankly off in the distance). They think it's a bullet proof vest. I've commented, well, ya know, for a little bit there we were getting shot left and right. OMG. But the least of my worries are questions or being locked in the entrance of the bank waiting for the manager to clear me. lol. Oh ma lawd! My concern is what happened yesterday when I went to the store. A man did a back hand smack on my arm, twice, then asked if I was in line. I used the word smack because that's what it was, it wasn't a one, two tap. .......That was the moment when I realized something has to change.

...continue reading "Please Don’t Touch Me"

My desire is to switch all my containers to ones that lay on their side with the labels showing. I'm going to need a much larger rack, too.
Tea

I've been experimenting and mixing a little this with that. Most have been good but some I'd rather not mention. Nasty. A waste of quality tea. 

I've found the best pain relief tea for me is a version of golden milk. I use fresh white turmeric, fresh ginger, Ceylon cinnamon, a few black peppercorns and an apple. If I add milk I use Almond milk. I prefer it without milk.

As with others who have tried this tea, it eases pain in a reasonable amount of time.

What are the risks or side effects of this tea? They can be significant depending on a person's health issues, about and strength of medication as well as the frequency and amount of medicinal tea used. Those with diabetes, IBS, stomach ulcers or chronic GERD should speak with a medical doctor before using medicinal teas. Turmeric used medicinally changes how some medications are metabolized. Metabalization of medications for depression or even a light muscle relaxer can be altered. Mood stabilizers and this tea should be cleared by a medical professional. Blood thinners or asprin can be effected. The variables can be wide concerning person safety.  ...continue reading "The Common Sense of Tea"

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Machinery 2
Machinery 2

In a comment to a reader I began listing off more reasons why it feels pointless to trust any doctor or treatment.

She said "I’m naked when I try to shed the blanket for more than a few minutes."

I understand that. I feel Naked. I feel Exposed. I feel Defenseless. I throw myself at the mercy of doctors who do not oblige me to the proper degree.

My response to her comment got me to thinking. When I went to a doctor I went stripped, exhausted, desperate. I was willing to do whatever they told me to do. Again and again I ran into abusive doctors or flat out incompetent ones. I took crap off people for one reason only - a means to an end. I needed help. I could not control the pain. I handed myself over because I felt I could not continue living at the rate I was going.

What has occurred to me here is that while feeling defeated I gave much of my power and voice to clowns. Each time they failed in an epic way, so too the will to assert myself. I floundered from promise to treatment doing exactly what I've spent 20 years in therapy learning not to do. Do not give away my voice or power. ...continue reading "I know what’s different. I’m at the helm."

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What's wrong with you?
I'm angry.
Yup, I guessed that.
I'm wearing it like a blanket that I refuse to remove.
What are you wearing under the blanket?
Skill. Love. Motivation.
Ok, I wasn't expecting those things. I thought you were going to say exhaustion, vulnerability, etc.
If you ask me, those are the reasons I have chosen to keep the blanket on.
Is it worth it?
My goodness, I'm so angry, and this depression feels like a garrote. I want to get up and eat dinner. I'd like a shower.
What's stopping you?
I want to run my business and post art. I want to have my cat near instead of pushing her away.
What's stopping you?

The Girl in Black Sundrip
The Girl in Black
Sundrip

Listen, Faith, listen. Let's think about the last year, no, we're going back to the last 3 years. In the last 3 years you've had more physical pain than your mother put you through in the 20 years you lived with her. That is not an exaggeration. You have broken teeth from biting down so hard to endure what was happening to your body. During pain attacks your body responded in ways that the body responds when it is writhing. In those situations you've destroyed bedding, vomited on the cat and tore at your clothing as you screamed. You went mad Faith, like anyone else would. Do you understand that?

...continue reading "What’s wrong with me? An inner conversation."

It's confirmed.  I've managed to have enough to get there for three days, then return. Betty said, "You know I'm going to worry."  Yup, I do, but, I'm going! I haven't been able to travel since 2012. I refuse to ever ride down with mom again. Never! OMG! That woman has a PhD in nagging. Oh my gosh! This year I'm riding with Wonka and his wife Blue. They have 10 year old twin boys and a girl about 13 yrs old. I call the twins the dynamic duo.

Again, there will be 7000 people. Dr. D asked a long time ago how I'll handle the noise. It's a different kind of noise. It's not a concert. It's certainly nothing like going to a super Walmart with 7000 people . For that, I'd call in sick. The person beside me won't yell Amen. No one will fall in the aisle unless they're disabled. Jumping around and screaming out doesn't mix well with PTSD.

...continue reading "Mid July Trip. Kids. Sleep. Meds."

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I'm still trying to come to terms with the health scare.

Patience - unavailable
Patience - unavailable

I micromanaged every move for fear it would be my last. I thought about a journal I've lost touch with, a girl who wrote about the "indignity of death." How is she? Where is she? I cleaned my room because no one should have to clean it up. I started to take out the trash but I was tired. Then I thought, if I won't be here tomorrow I should turn off the heat, ya know? I thought about doing my hair then realized it wouldn't matter. I never thought, I need to throw away this or that so no one finds it.

...continue reading "A Month of Strings 2"

It's 5:05am. I'm back in from walking outside. I took the trash out too. This is bad. I was going into full body spasms again. Big time  paranoid, head 100 mph. I took the patch off and took pain meds. I went outside and walked as fast as I could. I am steady when I'm not so medicated. I walked for only 15 min or so. There's a cop that stays at the park.

I can't do this at home unsupervised.

As I walked I could feel my body start to cramp, not seize, but cramp. Then a tiny rain drop hit my nose. Ah, there's a big PART of the problem, the barometric pressure changed. Part of me wishes it would never rain again. But then we'd miss the smell of water on earth. We'd miss how soft it can land on our noses. :-).

I didn't fail. I didn't. I just need more help than I have with ridding my body of the substance that won't even let me walk down the stairs safely.

...continue reading "I’m not a failure – Opiate Withdrawal"

I was betrayed.
I did exactly as I was told. I was told that if I take opiates exactly as I was told, I would be fine. I'm not fine!

I did not abuse my medication. I did not take more than I was supposed to take. As a matter of fact I was afraid of the medication, because I did not want to be an addict or one with a body dependent on the medication. But here I am 4 years later and I have been hospitalized because of the seizures and the sheer force of my body's refusal to accept that I will not continue to put opiates in it.

...continue reading "Opiate withdrawal from medical treatment"

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I remember she was resigned to living but not dedicated to it. This Faith had a better attitude about her situation than I have. She was willing to look past the imperfections of others and willing to be wrong if it meant the other person had time to cool down. Though her body was failing quickly she was the strongest she'd ever been.

A year ago I flashed this photo. It's only been a year.

In that year her heart was stolen. How amazing is that?

2015
2015

That Faith planned on doing what her friends do, hold free personal Bible studies online through applications like Skype.

She was very well aware of what her body was doing but she wasn't aware of the emotional destruction caused by physical deterioration. That reality hit when the next big change forced itself center stage - a blood clot in the shoulder, close to the neck after an injury.

...continue reading "I remember this woman with a twinkle in her eyes"

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