I can’t stand it. I don’t even know why I’m writing it. I guess because it helps just to say or scream that it hurts. I think when I hurt this way it starts to make my heart sad. I feel it emotionally, too. I’m not sure why. The physical pain makes me hurt inside […]
Tag: CRSD
This boy has been snuggly all day. I just love it, but he’s got to get off my chest soon because he weighs 11 pounds and feels quite heavy on my chest. It’s great when he’s on my legs though. That’s helpful, so is oxygen, which I’m fighting for right now. Lol One of the […]
I have to remember that all flare ups end. It feels like they won’t but it will. It takes time I feel like I don’t have to give. The pain is intense. If I put pressure on the foot it starts to burn like I dipped it in fire, but it stops burning within minutes. […]
Content – Talk of suicidal feelings surrounding Chronic Relex Sympathetic Dystrophy (CRSD), some hopelessness, hope art and talk of anniversary dates. We talked about how hopeless it feels to walk into the ER believing it’s a source of relief only to be told that there’s a crisis out there that has nothing to do with […]
Well then, I guess even the ER is refusing real pain therapies to people with documented Lupus and Chronic Regional Sympathetic Dystrophy (CRSD). I showed up at a sustained level 9 pain with my foot and leg messed up only to be given a line of crap and some Tylenol. Uh huh, Tylenol! I cried. […]
The problem with being told I’m strong is that it seems to give onlookers permission to let me be, do little, and go on as usual. I hate being told I’m strong because of all the hidden messages with it. My doctor and I had conversation where I was asked if I really wanted to […]
I smiled every time the doctor or nurse walked in the room. I smiled at the Radiologist, Podiatrist, Hematologist, Wound Team and the vampire, blood sucking Phlebotomist. I’m not an easy stick and hate getting my blood drawn, thus the name calling. Anyway, I smiled at them all, genuinely, because I was greatful for good […]
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Wake up
Fatigue has been my companion for nearly 4 days, including the weekend. I can’t seem to wake up for long. While I still don’t have a regular CNA for Saturday’s, I do have return visits from CNAs that fit well here. Saturday the CNA arrived at 4pm to 7pm which was perfect for me because […]
My blood and ANA are better than projected. There are no new blood clots and no infections so things are good. I’m pleased with today’s appointment. I went to see the Hematologist but canceled my therapy appointment bc I couldn’t do two heavy assignments back to back. As a matter of fact, I had a […]
After the amputation there has been significantly less CRSD pain. I will not attempt to explain it bc I don’t know if it’s a combination of the nerves and pain medication making a difference. I simply don’t know why there’s less CRSD after the amputation, but there is. I could be bc the nerves down […]