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I'm only human Lupus The People Behind My Eyes

Shots Update

I’m approved until December of this year then the fight is on again. However, they did approve it so I’ll have shots tomorrow. I only had one shot left, one! Wow what a relief! A huge, huge relief! I was so nervous. You can bet I’ll order 2 days early then put those shots back […]

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Lupus PTSD The People Behind My Eyes

The Insurance Fight

It came time to refill my fondaparinux shots which cost $5000 a month and that is usually covered by my insurance. The insurance company has denied payment and demands I use a cheaper blood thinner. I’m allergic to the other thinners such as Lovenox and Heparin. I bled internally and can’t take them. Here I […]

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Abuse Anxiety Dreams Lupus PTSD Siblings abused The People Behind My Eyes

Dreams

Content – Physical abuse. Emotional abuse. My dreams have ranged from strange to emotional to terrifying. Last night I had a dream I lost my identity but was assisted by a stranger to get it back. When I was handed papers that confirmed what I was saying all along, I am in fact Faith Austin, […]

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(CRSD) Reflex Sympathetic Dystrophy Artists Thoughts Chronic Pain Lupus Self Portrait The People Behind My Eyes

Therapy Review : Acceptance. Art Flame

Content : Brief suicide check in. Explaining myself, memories. Acceptance. Pain. So I walked into the building and my pain level rose to a nine out of ten. From the knee down on both sides it hurt like all get out. I told Dr D that I worry I eventually won’t be able to walk […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

All Flare ups End

I have to remember that all flare ups end. It feels like they won’t but it will. It takes time I feel like I don’t have to give. The pain is intense. If I put pressure on the foot it starts to burn like I dipped it in fire, but it stops burning within minutes. […]

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(CRSD) Reflex Sympathetic Dystrophy Anxiety Lupus PTSD The People Behind My Eyes Therapy Review

Therapy Review : Suicide Disease. Hope Art.

Content – Talk of suicidal feelings surrounding Chronic Relex Sympathetic Dystrophy (CRSD), some hopelessness, hope art and talk of anniversary dates. We talked about how hopeless it feels to walk into the ER believing it’s a source of relief only to be told that there’s a crisis out there that has nothing to do with […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

The Pointless ER Visit

Well then, I guess even the ER is refusing real pain therapies to people with documented Lupus and Chronic Regional Sympathetic Dystrophy (CRSD). I showed up at a sustained level 9 pain with my foot and leg messed up only to be given a line of crap and some Tylenol. Uh huh, Tylenol! I cried. […]

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Anxiety Art Art therapy Artists Thoughts Experimental design Mixed Media Paper PTSD Sketchbook diary The People Behind My Eyes

What If. Art Thoughts.

All ‘what if’ roads lead to nowhere. I got to thinking, what if I get this art table but I still don’t paint? Then of course my head took off, so I decided to sit in my wheelchair at the dinner table and paint a ‘what if’ road map. What if I struggle with the […]

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Anxiety Art therapy Artists Thoughts Life is like a box of The People Behind My Eyes Therapy Review

Table Trouble

Dr D and I again discussed my inability to paint. It pains me that I feel incapable of it. I still don’t trust the same though I’m getting better. But I also realized that I don’t have the same amount of alone time I once had before everything fell apart. I needed alone time to […]

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Chronic Pain Lupus PTSD The People Behind My Eyes

You don’t look sick

I get that a lot. As a matter of fact, the new CNA, the one I like quite a bit, said I look like I could get out of the chair and start walking. She said I look perfectly healthy. I’m beginning to be ok with such nonsense. I can’t get upset with people for […]