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I'm only human Lupus The People Behind My Eyes

Shots Update

I’m approved until December of this year then the fight is on again. However, they did approve it so I’ll have shots tomorrow. I only had one shot left, one! Wow what a relief! A huge, huge relief! I was so nervous. You can bet I’ll order 2 days early then put those shots back […]

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Anxiety I'm only human The People Behind My Eyes

Clearing My Head

It’s 9:25pm on Saturday. I’ve got to get up to go to services tomorrow, however, my brain has kicked on with the aide gone and the lights out. It seems I’ve got a little more to worry about. I thought I had 10 shots put back but I’ve only got four. Right now I’m doing […]

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Lupus PTSD The People Behind My Eyes

The Insurance Fight

It came time to refill my fondaparinux shots which cost $5000 a month and that is usually covered by my insurance. The insurance company has denied payment and demands I use a cheaper blood thinner. I’m allergic to the other thinners such as Lovenox and Heparin. I bled internally and can’t take them. Here I […]

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(CRSD) Reflex Sympathetic Dystrophy The People Behind My Eyes

Positive Doctors

My Oncologist /Hematologist is such a positive doctor. Today he again told me I’m a walking miracle and that I should not worry about the future. He said to keep taking the medications, keep my appointments and move forward. He said if it happens again we’ll deal with it. He explained what the doctors would […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

The Same Road

I saw the surgeon today. He didn’t smile much at first. I always try to read him when I go in. I asked if he had bad news. I said, am I going to have to do that fight again, another excruciating, painful time? He said yes. I said, you could have given that news […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

No Osteomyelitis. Chronic illness is expensive.

I was tested twice more and the final answer is no. I don’t have a bone infection. No Osteomyelitis. The infection from the ulcer reached deep, but the bone wasn’t infected at all. I’m in the clear on that one. Also, after 2 months and much fuss, the ulcer is nearly gone. I’m not even […]

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(CRSD) Reflex Sympathetic Dystrophy Lupus The People Behind My Eyes

Back from the hospital

I’m home now. What a scare. My foot is infected again. I went to the hospital and was admitted for 3 days. The wound turned black and scared everyone to death. I was originally diagnosed with a bone infection but the surgeon that amputated my foot as well as his partner disagree with that diagnosis. […]

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(CRSD) Reflex Sympathetic Dystrophy Anxiety Chronic Pain Lupus PTSD The People Behind My Eyes

Struggling. Bruised but not broken.

I’m struggling a bit to keep anxiety under control. My pain levels are too high and I’ve not had much sleep. Today I saw Dr. D at his office. It was a good session yet I dissociated most of the time. It was as if I sat beside myself the entire time talking to him. […]

Categories
Chronic Pain Lupus PTSD The People Behind My Eyes

On Collecting Illnesses

I collect tea and porcelain dolls. My body collects illnesses. This is my second round of meds for the infection in my feet. At the beginning of the second round I had a side effect from the medication that caused a rash from my neck to my stomach, front and and back, arms and shoulders. […]

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Anxiety Chronic Pain I'm only human Lupus PTSD The People Behind My Eyes

Foot Stuff. Fear of Pain.

I’ve been going in to see the doctor more than normal because my body is having a hard time fighting the infection. The days I’ve not gone in she’s called. I’m also to keep a photo diary of the changes to the wound site, which I’ve been doing. The infected area changes in size almost […]