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(CRSD) Reflex Sympathetic Dystrophy Anxiety Artists Thoughts Chronic Pain The People Behind My Eyes Therapy Review

Deep Breath

Wow! Anxiety has been high for over a week. It peaked today. I had to really concentrate on my breathing and slow it down. I’ve got a new diffuser because after 2 years, my Young Living diffuser went caput. The new one is also white and purple. Therapy was full of anxiety but not because […]

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Life is like a box of The People Behind My Eyes

On Getting the COVID-19 Vaccine

I talked to my Hematologist about getting the vaccine. He thinks it’s a good idea. Of course I won’t get it in the first round but I want to be in line for it. There are a lot of people concerned about its safety. I’m one of them. Here’s what I’m thinking – the vaccine […]

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Anxiety Chronic Pain Life is like a box of PTSD The People Behind My Eyes Therapy Review

Therapy Review: CNAs. Anger. Touch. Pain.

I’ve been struggling emotionally since the GYN appointment. It was a bit much for me. Sleep has been rough and anxiety has been really high. I’m kind of struggling a bit. We talked about continuing deep breathing and lavender for anxiety relief. We also talked about the anxiety that comes with this CNA just up […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

Pelvic Ultrasound. Therapy and Accessibility.

I’m going to have a transvaginal ultrasound Wednesday the 8th at 1:10pm. One of my best friends is taking me. She and her husband took me to the doctor yesterday. When I came out and it was over, I was emotionally spent. I cried and cried. Right now I feel like crap. I want to […]

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I'm only human Lupus The People Behind My Eyes

Shots Update

I’m approved until December of this year then the fight is on again. However, they did approve it so I’ll have shots tomorrow. I only had one shot left, one! Wow what a relief! A huge, huge relief! I was so nervous. You can bet I’ll order 2 days early then put those shots back […]

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Anxiety I'm only human The People Behind My Eyes

Clearing My Head

It’s 9:25pm on Saturday. I’ve got to get up to go to services tomorrow, however, my brain has kicked on with the aide gone and the lights out. It seems I’ve got a little more to worry about. I thought I had 10 shots put back but I’ve only got four. Right now I’m doing […]

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Lupus PTSD The People Behind My Eyes

The Insurance Fight

It came time to refill my fondaparinux shots which cost $5000 a month and that is usually covered by my insurance. The insurance company has denied payment and demands I use a cheaper blood thinner. I’m allergic to the other thinners such as Lovenox and Heparin. I bled internally and can’t take them. Here I […]

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(CRSD) Reflex Sympathetic Dystrophy The People Behind My Eyes

Positive Doctors

My Oncologist /Hematologist is such a positive doctor. Today he again told me I’m a walking miracle and that I should not worry about the future. He said to keep taking the medications, keep my appointments and move forward. He said if it happens again we’ll deal with it. He explained what the doctors would […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

The Same Road

I saw the surgeon today. He didn’t smile much at first. I always try to read him when I go in. I asked if he had bad news. I said, am I going to have to do that fight again, another excruciating, painful time? He said yes. I said, you could have given that news […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

No Osteomyelitis. Chronic illness is expensive.

I was tested twice more and the final answer is no. I don’t have a bone infection. No Osteomyelitis. The infection from the ulcer reached deep, but the bone wasn’t infected at all. I’m in the clear on that one. Also, after 2 months and much fuss, the ulcer is nearly gone. I’m not even […]