Is there even a comfortable position for people with inflamed kidneys? I’ve not found it.
Because I am now predibedic, I’m going to ask my doctor for the DEXCOM system. I’m a 7 but it’s still a problem and we want it worked on.
Faith Magdalene
Tag: Chronic Illness
I Can Feel That
If I don’t drink all 64 oz of water a day as the doctor requested I feel my left kidney protest. It hurts.
After months of abstinence, I had a cheeseburger. I went to McDonald’s of all places. I can feel my left kidney protest. Holding my side, what was I thinking?
In general I qfeel physically weak, puny, chilled and tired.
Since I slipped a bit this week, I’d like to remind myself it’s only Monday. Keep at it. Don’t give up even for a minute.
I know I don’t feel well but I won’t stay down. I intend to do everything the doctor asks me to do as well as possible. I have a winning spirit. I intend to win this battle, too. My left kidney is currently unhealthy. It hurts. It slows me down even more and makes moving that much harder.
The quality of my blood is poor, too. I’ll know my numbers Wednesday. That’s when I go to Hematology / Oncology for my tests for other things. It’ll be interesting to see what my numbers are. By interesting I mean scary. They can’t be good.
Faith Magdalene
Slow Moving and Art Updates.
I woke around 9am but I didn’t get up until 1 pm. I just couldn’t get going.
Yesterday was a full day in that we went to Michael’s craft store, Hobby Lobby and Lowes. I got a sunflower stash at Michael’s, all 4 of the large sunflowers total $10. Score! I’m physically exhausted from that but it was great.
I’ve been trying to figure out why I’m so afraid to sleep. I’ve even wanted to sleep with the light on. I’m uneasy and even afraid at night. I have no reason to be. I’m not a kid anymore. I’m under my own roof. Yes, the fear is strong but it only lives in my head. It’s not based on 2023. The fear is from a few years past and when I was young.
I fear laying down flat and suffocating. I didn’t fear laying down flat until the 2018 events. Now I panic and can’t breathe.
For me, the most trauma is February 12th when it all happened. May 7th when they amputated my foot and August 25th when I moved into this apartment. It’s funny, I don’t remember the date of the thrombectomy. That’s the heavy duty surgery I did. So yeah, I’ve got some PTSD stuff going on right now.
It’s also noteworthy that I’ve been switching personalities a lot. Honestly, the only person who should be out with our caregiver is Jordan yet little ones, Joan and Maureen have been out, too. The anxiety levels are very different.
I love that she takes me places. I love that she hasn’t missed a day nor has she been late the whole 4 months she’s been here. We’ve clashed but we’ve not quit on each other. She flipped out once and said some horrible things. I hope she doesn’t believe what she said …….. We primarily get along well.
Today I want to isolate. I want baked goods and endless hours of tiktok. That’s what depression says I want. Well, I’m up now. The tea kettle is on. I’ll sip Earl Gray, change my clothes and fight a little bit.
One secure way to feel better is to reach out and do something for others. A friend that knows I’m struggling is sending an e-card, everyday, for a full month. If that sounds like a lot, the same cherished friend sent me a rose every day for 5 months I was in the hospital. She’s truly a gift. So, what can I do to help someone close to me? I’m going to make two small paintings, one for the person sending me e-cards and one for a different person I know is struggling.
I think I feel well enough now to set a few minor goals for today.
- Dust while listening to my book
- Clear off my art table
- One of two small paintings / greeting cards
- Get in a halfway decent meal
Hopefully I can get some more art in my Etsy shop. I’ve got two more on the way.
I’m itching to make dolls again, too. I purchased 3 skeins of yarn yesterday to use for the doll’s hair; plum, burnt orange and honey-flaxen blonde. I want to do the purple first. I keep seeing people with beautiful non-traditional hair colors so I got purple and orange for doll’s hair. I’ll see what my creative side can do with these colors.
Alright, after 2 cups of tea and some typing, I think I’m ready to do part two of today. I feel a little stronger.
Four things I’m grateful for today.
- A friend is coming to help with my hospital bed that’s giving me the blues.
- I feel a tad bit of motivation. I want to tap into it.
- Galaxy Nebula projector that makes being in the dark a bit easier.
- You 🙂 for taking the time to read this. Thank you 🙂
Faith
Freedom. Up Hill Battle.
I paid a heavy price in pain for a little bit of freedom from my wheelchair. I decided to walk about 100 feet up a ramp to my apartment. I needed to stand up at my normal 5 foot 3, and see the world from the angle I was accustom to.
The problem with walking outside is that I can’t feel the ground under me. With shoes on, I can’t feel the ground. It takes a lot of concentration. But today I needed freedom. I swear I feel like a caged animal willing to pay a high price to have someone open my cage and let me out.
The price I paid for about 100 feet is extreme pain in both hips. Both hips have avascular necrosis. I’m having terrible spasms. All of this just to stand up and walk for a little bit.
Was it worth the cost? Yes, for a few moments, walking in the sun, yeah it was worth this.
I’m in bed right now willing a slice of pizza hut over here. Lol It’s in the kitchen. Lol. But I’m writhing in pain. My legs hurt so badly, they’re squirming all over the bed down there. The pain is from the ankle up to the knee then both hips. I really want that pizza though lol.
My little walk reminds me very much of my little painting called Up Hill Battle. I guess sometimes the hill seems small to others but that doesn’t mean it’s not a battle for the person trying to climb it. We never know how much baggage a person is carrying, mental or physical pain. Even the slightest incline can be a struggle when the person walking is carrying a heavy load.
The miniature is complete. I gave it a nice seal yesterday. My intent is to have it in my shop this evening. If you don’t have an Etsy shop but there’s interest, you can send me an email. I accept PayPal. All contact info is on the sidebar.
I’ve been craving pizza for days. I really want that pizza in the kitchen but the price is a little high for me to get up and get it. I’ll use patience. I’ll rest then have pizza later.
It was still a nice day. I love outing day 🙂 Please let this CNA stay. I adore her.
Faith
Gratitude: Relief
While learning to live in a COVID world, I’ve begun to venture out and meet new people. I met a woman who was in the segregated south and was living in the thick of historic moments many only read about.
I’m grateful for the loyal love and patience shown to me at this pivotal moment in my life.
My friends love me enough to want to rescue me. They love me enough not to, but to instead walk with me or offer guidance.
I’m grateful for personal acupuncture and vagus nerve therapies. Some of the therapies associated with my ears have stopped panic attacks within one minute. I wear an adjustable helix or daith cuff (ear cuff) to assist with pain management.
I purchased a Trigger Point Stimulator Tool which I highly recommend. It’s been helpful in relaxing neck and side muscles. Sciatica be gone! The one I purchased explains that there are “two crystals inside will create a small electrical stimulus that mimics acupuncture and helps release trapped energy.”
I have enjoyed more peace of mind as of late than I have in a long time. Peace of mind and happiness are not a constant state of being, instead an accumulation of moments.
I’m grateful for plants. I so love plants! They help me focus my thoughts and do something positive with my anxious energy.
Joe has turned out to be a wonderful service animal. I had to look it up if cats can detect and alert illness because it sounds so strange but, three times Joe has loudly demanded that I wake up.
The other day was the 3rd time he insisted loudly, with screeching, that I wake up. I knew what he was doing so I sat on the edge of the bed. I used my rescue inhaler then took all my vitals.
Long story short, he woke me while I was having an asthma attack with terribly low blood pressure and very fast heart rate. When my sitting heart rate went above 106, Joe began to alert me with that horrible screech.
To prevent me from going anywhere, Joe parked himself behind the wheel of the wheelchair and refused to move. He was clearly focused on me with huge, huge pupils.
When I had to use the restroom I carefully got in the chair. Joe walked beside the chair all the way to the restroom as if he was escorting me. Maybe an hour later I was so tired that I had to sleep. I felt comfortable sleeping bc Joe was watching over me.
How on earth did I score a senior cat who can naturally detect pulmonary issues? I couldn’t be more grateful.
Faith
Dignity in sickness and in health
Content – Death of baby while in the ER. Talk about crying but that’s all.
I was piddling around when suddenly I had to use the restroom. I knew when the feeling came on that I had seconds to get to the there so I raced, but didn’t make it.
This is the life of an amputee. I fall out of the chair or I can’t get there fast enough and wet myself as I fall while trying to transfer to the toilet. It’s crazy!
After not making it and getting cleaned up, I was very tired. I realized I only had one sock on but I was too tired to put on the other or take the one I had off, so I left one off and one on.
As I sat in the chair I began to sweat profusely and to feel nauseated to the point of throwing up. Then I started having a hard time breathing. Inhalers weren’t working. I couldn’t breathe. I hit the Life Alert button on the floor.
What felt like 15 minutes later, the ambulance showed up. Four extra people pushed their way into my space and for some reason it scared me. I didn’t understand why I was afraid AND starting to become combative, but I was.
One of the EMT’s asked why it’s so hot in the apartment. He also said it was extremely humid, too humid for my plants, terrariums, cat and me, he said. He said I was even hot to the touch.
After I got to the hospital they discovered I have an issue with my heart because of chronic dehydration. They didn’t make any conclusions about my breathing problems. No more blood clots though.
They wanted to take a CT scan of my head and chest, which I have done a million times. I got in there, laid down and proceeded to freak out! I said, let me up! The lady rushed to me and said, “What is it? Can you tell me what you’re feeling?” I said, “Rage and fear! Let me up NOW! So I was given Vistaril (glorified benadryl) to relax. About 30 minutes later I took the test and it came back clear. I couldn’t believe how I responded the first time.
The nurses had a hard time getting the IV in bc of dehydrated veins. They stuck me 5 times. My blood kept coagulating too fast while trying to take it. Seems my blood disorder is alive and well.
As I was having my blood drawn a woman in the ER started to cry. It was a gut wrenching cry, the cry that says a child has died. The patients were all crying with her. It was horrible. She cried and cried then screamed, “My baby! My baby!”…… Oh man! I well-up now just think about it.
When she first started crying I asked the nurse if he understood what he was hearing. He said yes, I just heard my own soul break…..
I cried so hard. I mean I wept right there, openly. There is no greater loss or grief than the loss of a child, none.
At that time several ambulances pulled in bc the closest hospital was closed to new people because of ransom ware. People were being placed in the hallway and in any cubby hole they could fit in.
Twelve hours after arriving I was going to be discharged to my Hematologist’s office for further care, but I had to use the restroom before leaving. I told them about my bladder damage but it still took 10 minutes to get to me. I wheeled to the restroom and about 15 seconds before I got to the door, I wet on myself, soaking my clothing. I changed into 2 gowns but was too tired from everything to get those horrid yellow hospital socks back on my feet. I sat double gowned with a bright yellow sock dangling from my amputated foot. I thought to myself, I might have to go back to wearing depends. Sigh.
I just want dignity. Going to the hospital this time was rather humiliating. Leaving in 2 gowns because I wet myself was humiliating. This prompted the painting of a child holding on to a white balloon in the midst of darkness. There are several faces in the dark and a shadow figure to the right and the bottom.
“White Balloon” is in acrylic on paper and is about 5 inches tall. It’s a baby painting with a big message: I’m trying to hold on to and protect my inner peace but everything around me wants a bite.
Faith