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Lupus The People Behind My Eyes

Self Distancing – Coronavirus Precautions

I feel like I always do, a little under the weather and a lot in pain, and that’s how I plan to keep it. I am now self distancing from the general public. I need my CNAs so they can come, but no one else can enter and I’m not leaving. I don’t even have […]

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Anxiety The People Behind My Eyes

Coronavirus thoughts from a high risk person

The CDC has already suggested that the elderly and people with a compromised immune system should stay home. I’m primarily homebound but I do go to the doctor and grocery store, that’s really it. I think Walmart is a breading ground for all sorts of infectious diseases, not just potentially COVID – 19 so I’m […]

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I'm only human Lupus The People Behind My Eyes

A box full of life

I know I’ll have to fight these people again but for now I’ve got a month’s worth of shots in my hands. What a relief! Five days waiting for these felt like forever. Thank you to everyone who called, text, emailed and left comments and likes of support. It’s much appreciated. ❤️ Faith

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I'm only human Lupus The People Behind My Eyes

Shots Update

I’m approved until December of this year then the fight is on again. However, they did approve it so I’ll have shots tomorrow. I only had one shot left, one! Wow what a relief! A huge, huge relief! I was so nervous. You can bet I’ll order 2 days early then put those shots back […]

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Anxiety I'm only human The People Behind My Eyes

Clearing My Head

It’s 9:25pm on Saturday. I’ve got to get up to go to services tomorrow, however, my brain has kicked on with the aide gone and the lights out. It seems I’ve got a little more to worry about. I thought I had 10 shots put back but I’ve only got four. Right now I’m doing […]

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Lupus PTSD The People Behind My Eyes

The Insurance Fight

It came time to refill my fondaparinux shots which cost $5000 a month and that is usually covered by my insurance. The insurance company has denied payment and demands I use a cheaper blood thinner. I’m allergic to the other thinners such as Lovenox and Heparin. I bled internally and can’t take them. Here I […]

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Chronic Pain Lupus The People Behind My Eyes

Pain and Fatigue

I’m flat on my back right now and have been for 2 days. My pain levels are quite high with relief coming by way of fatigue. I sleep like I’ve taken some kind of medication, though I’ve not. My neck is the main culprit with shoulders close behind. I’ve been doing stretches in my waking […]

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Abuse Anxiety Dreams Lupus PTSD Siblings abused The People Behind My Eyes

Dreams

Content – Physical abuse. Emotional abuse. My dreams have ranged from strange to emotional to terrifying. Last night I had a dream I lost my identity but was assisted by a stranger to get it back. When I was handed papers that confirmed what I was saying all along, I am in fact Faith Austin, […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

All Flare ups End

I have to remember that all flare ups end. It feels like they won’t but it will. It takes time I feel like I don’t have to give. The pain is intense. If I put pressure on the foot it starts to burn like I dipped it in fire, but it stops burning within minutes. […]

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(CRSD) Reflex Sympathetic Dystrophy Anxiety Lupus PTSD The People Behind My Eyes Therapy Review

Therapy Review : Suicide Disease. Hope Art.

Content – Talk of suicidal feelings surrounding Chronic Relex Sympathetic Dystrophy (CRSD), some hopelessness, hope art and talk of anniversary dates. We talked about how hopeless it feels to walk into the ER believing it’s a source of relief only to be told that there’s a crisis out there that has nothing to do with […]