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Anxiety Life is like a box of The People Behind My Eyes

Care Plan

Nothing is business as usual while waiting for a fast track COVID – 19 test. I definitely lost sleep over it last night but I was able to get a good nap. I feel much better. The nursing company said I’d know more about the care plan today which is that I will have the […]

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Anxiety Life is like a box of Lupus The People Behind My Eyes

COVID-19 Shock

I don’t know if I should cry or fall to my knees and pray. Wow. Ok so, my Saturday CNA is being tested for COVID-19 during which time I was instructed to quarantine alone. No care. No CNAs. No nurses. Just me. This should be interesting. There’s a lot going through my head right now. […]

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Chronic Pain I'm only human Lupus PTSD The People Behind My Eyes

Two Years On

May 7th will be two years with the amputation. Funny, my therapist still can’t say that word. He just says, ‘the operation.’ I think the only thing that really makes me sad is not yet being able to wear shoes. I thought I could but not yet. I purchased a pair I thought I could […]

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Lupus The People Behind My Eyes

Self Distancing – Coronavirus Precautions

I feel like I always do, a little under the weather and a lot in pain, and that’s how I plan to keep it. I am now self distancing from the general public. I need my CNAs so they can come, but no one else can enter and I’m not leaving. I don’t even have […]

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Anxiety The People Behind My Eyes

Coronavirus thoughts from a high risk person

The CDC has already suggested that the elderly and people with a compromised immune system should stay home. I’m primarily homebound but I do go to the doctor and grocery store, that’s really it. I think Walmart is a breading ground for all sorts of infectious diseases, not just potentially COVID – 19 so I’m […]

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I'm only human Lupus The People Behind My Eyes

A box full of life

I know I’ll have to fight these people again but for now I’ve got a month’s worth of shots in my hands. What a relief! Five days waiting for these felt like forever. Thank you to everyone who called, text, emailed and left comments and likes of support. It’s much appreciated. ❤️ Faith

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I'm only human Lupus The People Behind My Eyes

Shots Update

I’m approved until December of this year then the fight is on again. However, they did approve it so I’ll have shots tomorrow. I only had one shot left, one! Wow what a relief! A huge, huge relief! I was so nervous. You can bet I’ll order 2 days early then put those shots back […]

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Anxiety I'm only human The People Behind My Eyes

Clearing My Head

It’s 9:25pm on Saturday. I’ve got to get up to go to services tomorrow, however, my brain has kicked on with the aide gone and the lights out. It seems I’ve got a little more to worry about. I thought I had 10 shots put back but I’ve only got four. Right now I’m doing […]

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Lupus PTSD The People Behind My Eyes

The Insurance Fight

It came time to refill my fondaparinux shots which cost $5000 a month and that is usually covered by my insurance. The insurance company has denied payment and demands I use a cheaper blood thinner. I’m allergic to the other thinners such as Lovenox and Heparin. I bled internally and can’t take them. Here I […]

Categories
Chronic Pain Lupus The People Behind My Eyes

Pain and Fatigue

I’m flat on my back right now and have been for 2 days. My pain levels are quite high with relief coming by way of fatigue. I sleep like I’ve taken some kind of medication, though I’ve not. My neck is the main culprit with shoulders close behind. I’ve been doing stretches in my waking […]