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I'm only human Lupus The People Behind My Eyes

A box full of life

I know I’ll have to fight these people again but for now I’ve got a month’s worth of shots in my hands. What a relief! Five days waiting for these felt like forever. Thank you to everyone who called, text, emailed and left comments and likes of support. It’s much appreciated. ❤️ Faith

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I'm only human Life is like a box of The People Behind My Eyes

My Funeral: One Last Cup

How do you want your funeral? That’s the question we’ve been discussing. I swear I don’t have morbid friends or plans to exit, but we have talked about these things especially since we’ve lost good friends recently. I found the perfect urn for myself. Anyone who knows me knows this is in fact the urn […]

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Art Artists Thoughts Life is like a box of

It’s here and I love it

I couldn’t be happier. I love the table. I got it from Amazon.com. I can roll my wheelchair right up to it and roll around the art studio getting supplies and fresh water and wine. I painted for two hours which is about what I’ve been doing for a little bit. It feels great. Pretend […]

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Art

Flexibility. Poor Attitudes. Blessings.

I’m not flexible. I try to be but I’m not. Change has never been something I could deal with well. My mind all but rejects the idea of change as if it were a disease. My mother used to tease me saying she was going to change the color of her hair. Oh the idea […]

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Chronic Pain Lupus PTSD The People Behind My Eyes

Expectations

It occurred to me the other day that I expected to be healthier than this and more functional. I don’t know why I expected it but I did. It never occurred to me, even while in the hospital under those circumstances, that I’d lay here like *this,* feeling like *this*. What on earth was I […]

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Chronic Pain Lupus PTSD The People Behind My Eyes

Foot Stuff. Good Stuff.

Three times last week I saw the doctor about my right foot because of the infection. She took a small biopsy to see exactly what type of infection is giving me the blues. I should know Wednesday when I return to her office. I’m still handling it ok emotionally, I think. I hate, hate, hate […]

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Art Chronic Pain Lupus The People Behind My Eyes

Positioned

I didn’t get to sleep until 9 this morning bc my pain levels were too high. I tossed and turned and laid here looking at the wall. Finally I slept and woke at 6pm. The entire day is over. I’m not discouraged by this today bc the bigger picture is this – I’ve got few […]

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Art ART GALLERY Digital Art Faces Lupus Originals Paintings Self Portrait Sunflowers Surreal The People Behind My Eyes

Surviving to Eke out Gratitude

Monday was one of the hardest days I’ve had in a while. It started off with nightmares that stayed with me for much of the day. I tried to go back to bed to start over but had yet another nightmare. Then as planned, I got myself together, got on my horse (wheelchair) and left […]

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Chronic Pain Life is like a box of Lupus The People Behind My Eyes

Sasquatch Rival

Do you know what it means when hair grows on your legs? It’s not just an inconvenience for Westernized women, it’s a sign of health. For years my legs had no hair because of the edema and other issues. Now, with less edema, with better circulation and healthier blood I actually have hair growing on […]

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I'm only human The People Behind My Eyes

Gratitude Expressions 8/26/18

I am, first and foremost, grateful for life itself! I’m grateful for each breath, even when it’s labored, even when it hurts. I’m grateful to be alive. I’m about to be 47 years old at the end of this month. I can say I’ve earned each gray hair on my head which is why I […]