Well then, I guess even the ER is refusing real pain therapies to people with documented Lupus and Chronic Regional Sympathetic Dystrophy (CRSD). I showed up at a sustained level 9 pain with my foot and leg messed up only to be given a line of crap and some Tylenol. Uh huh, Tylenol! I cried. […]
Category: Lupus
I get that a lot. As a matter of fact, the new CNA, the one I like quite a bit, said I look like I could get out of the chair and start walking. She said I look perfectly healthy. I’m beginning to be ok with such nonsense. I can’t get upset with people for […]
We talked about figuring out how to live with instability, with the unknown. I’m not a very flexible person. I’m not spontaneous, don’t like to have someone jump out and surprise me. But my health is one big unstable lion that is silent for awhile but waiting for the moment to roar. We talked about […]
It’s still a bit difficult to reach out, but I did with a friend this evening. I told her what the surgeon’s prognosis is. I decided to risk and tell her that for an hour or so each morning I struggle with the feeling that it was pointless to wake up. It takes a good […]
All “what if” roads lead to nowhere. I decided to draw a little line drawing with my funky triple lead colored pencils to depict all those “what if” roads I’ve been going down. It’s not a great photo but the idea is there. It’s a drawing of roads going everywhere, fast. What if I die […]
The problem with being told I’m strong is that it seems to give onlookers permission to let me be, do little, and go on as usual. I hate being told I’m strong because of all the hidden messages with it. My doctor and I had conversation where I was asked if I really wanted to […]
A friend of mine came over and brought fried chicken and a bouquet of sunflowers. It was too sweet. We sat and talked while I ate. I was hesitant to talk about health stuff because I didn’t want to depress her. It was a very nice visit though. Yesterday after I blogged, I went ahead […]
I saw the surgeon today. He didn’t smile much at first. I always try to read him when I go in. I asked if he had bad news. I said, am I going to have to do that fight again, another excruciating, painful time? He said yes. I said, you could have given that news […]
I went to the store today to purchase cat food for Joseph when I decided to stop by the shoe section to see if I could find something I like. It was suggested by friends and my nurse that I try buying 2 different sizes, one for the full foot, one size for the amputated […]
He’s a chatter box kitty but as sweet as can be. He sleeps on my chest and purrs. He gives me little cat kisses. This is my new buddy Joey. Joey is a tabby male, neutered and 9 yrs old. He’s calm and friendly to visitors. He doesn’t know a stranger. He’s got big, bright […]