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Anxiety Lupus PTSD Sketchbook diary The People Behind My Eyes

The CNA Challenge

I’ve got 2 new CNAs right now. I talked to the company and told them how I’ve been feeling about the loss of care every few months. I feel like a failure, I said. I feel like people think it’s all my fault and that maybe people simply don’t like me after awhile. The manager […]

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(CRSD) Reflex Sympathetic Dystrophy Art Artists Thoughts Chronic Pain Lupus The People Behind My Eyes

Sewing with a machine as an amputee

I sat down to hand sew dolls but my hands cramped and spasmed terribly. I thought I’d try to see if I could use my sewing machine despite half a foot amputated and despite significant nerve damage. I had my CNA bring it to the table but I didn’t try anything until after she left […]

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Abuse Art therapy Artists Thoughts Chronic Pain Lupus Sketchbook diary Sunflowers The People Behind My Eyes

Journal Art : Family and Lupus

I’ve concentrated more on sewing dolls and bears (yes teddy bears) than I have on painting, however, I’ve not neglected my art therapy journal. I tend to pick it up at night and doodle what I’m feeling or I paint during my therapy session. A few entries I chose to publish here are significant in […]

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Anxiety Life is like a box of Lupus The People Behind My Eyes

COVID-19 Shock

I don’t know if I should cry or fall to my knees and pray. Wow. Ok so, my Saturday CNA is being tested for COVID-19 during which time I was instructed to quarantine alone. No care. No CNAs. No nurses. Just me. This should be interesting. There’s a lot going through my head right now. […]

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Chronic Pain I'm only human Lupus PTSD The People Behind My Eyes

Two Years On

May 7th will be two years with the amputation. Funny, my therapist still can’t say that word. He just says, ‘the operation.’ I think the only thing that really makes me sad is not yet being able to wear shoes. I thought I could but not yet. I purchased a pair I thought I could […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

Pain

I keep sewing and painting through the pain. If I stop for too long I begin to panic. I made it through the April rains into May, which I hope is a smoother, less painful ride. I’m a bit tearful and tired and hope to sleep soon because I really can’t stand this. I can […]

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Chronic Pain Lupus The People Behind My Eyes

Another Thoughts List

I don’t have a single subject or a lengthy one, just fragmented thoughts. I need contact with the outside world. I don’t necessarily have to go outside often, but I need people to come here. I fear getting coronavirus and being completely isolated with it. I wouldn’t be able to have my CNAs if I […]

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Anxiety I'm only human Lupus Self Portrait The People Behind My Eyes

Me and Face Masks

Me smiling. I laugh more than I smile. Recently I’ve had more to smile about. I feel as if I’ve gotten my second wind. I’ve got a lot more confidence concerning the world situation and feel safe and okay at home. The world is still big but doesn’t feel so big I can’t manage stress. […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

Panic Mode

I go from sleepless nights to straight fatigue with an undercurrent of panic and impatience. I’ve vomited and stressed myself right into an outbreak all over my chest. I can’t get Benadryl until April 1st. Man. I’ve got a doctor’s appointment the 30th of this month. I wish I could cancel. I’ve got to calm […]

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Lupus The People Behind My Eyes

Self Distancing – Coronavirus Precautions

I feel like I always do, a little under the weather and a lot in pain, and that’s how I plan to keep it. I am now self distancing from the general public. I need my CNAs so they can come, but no one else can enter and I’m not leaving. I don’t even have […]