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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus PTSD The People Behind My Eyes

Therapy Review : Pain. Ablation. Joe

I’m quite close to chucking it all and heading to the emergency room for a shot of whatever that was they gave me the last time I was there. It’s been a week of high pain and vomiting. I hoped I’d last until it’s time for the ablation but I can’t stand it. Not only […]

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Anxiety Chronic Pain I'm only human Lupus PTSD Rag Doll Self Portrait The People Behind My Eyes Therapy Review

Therapy Review : Knowing Pain. Sorrow Dolls

Last week I made a statement in therapy that I had to reexamine. I said that all I know is pain. I’ve had Lupus since I was a child and I had my mother to deal with. Now I’ve got Lupus, other health issues and mental health issues, all very painful to live with. Maybe […]

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Anxiety Chronic Pain I'm only human Lupus The People Behind My Eyes Therapy Review

Therapy Review : Belonging

I told Dr D about my Nebula projector. He asked if I am feeling older and question my place in the universe. I certainly didn’t connect the two but he did. He mentioned that I turned 49 late August and that people in midlife begin to ask deeper questions about life and seek out stars […]

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Abstract Art Anxiety Art therapy Lupus The People Behind My Eyes

Anxiety. What if Painting

Of course my head has been everywhere. I don’t feel good at all and the pain of this is constant. At first I thought, it’s just more pain, something I can ignore. I still think that but this is a new pain so I worry about not knowing what the pain means. Is my stomach […]

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Anxiety I'm only human Lupus The People Behind My Eyes

A New Course

I’m in the process of changing all my care to one hospital system instead of trying to have a Family Doctor who gives referrals to one hospital and a Hematologist and surgeon at a totally different hospital. For the sake of being clear on which hospital I want to go to I’ll just call it […]

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I'm only human Lupus

Results. Enough. I’ll keep going.

The results showed a 2x2x2 tumor in my uterus (about the size of a lime). They want to see about non-surgical treatments but if the Oncologist / Hematologist says I can’t take it because of my blood disorder then I have to have it surgically removed. The estimated time for healing I was given was […]

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Lupus The People Behind My Eyes

Therapy Review : Health Review

I’m a little angry. My hands are tied with therapy. I’m not going to go in the wheelchair then leave it outside while I go up the stairs and in the door. Transportation to his office could smooth out if I used indygo or the CICOA rides, but the problem remains – I can’t get […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

Pelvic Ultrasound. Therapy and Accessibility.

I’m going to have a transvaginal ultrasound Wednesday the 8th at 1:10pm. One of my best friends is taking me. She and her husband took me to the doctor yesterday. When I came out and it was over, I was emotionally spent. I cried and cried. Right now I feel like crap. I want to […]

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Lupus PTSD The People Behind My Eyes

On seeing the doctor. Blood disorder issues.

Content: Passing more golf ball sized blood clots. Oncologist and Gynecologist appointments coming up. I went to the doctor but they were unable to examine me for various reasons. They wanted to start me on a medication that I can’t take because of the blood clots history. I called my Oncologist / Hematologist to verify […]

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Anxiety I'm only human Lupus PTSD The People Behind My Eyes

Perimenopause and clotting. Blood thinner realities.

Content: Very personal entry. Perhaps not for the squeamish. Talk of blood and blood clots as well as being on a blood thinner during the cycle. I’m struggling physically. I thought I was going to the hospital last night. I didn’t go because I thought to myself, I just can’t do the battery of tests […]