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(CRSD) Reflex Sympathetic Dystrophy Art Artists Thoughts Chronic Pain Lupus The People Behind My Eyes

Sewing with a machine as an amputee

I sat down to hand sew dolls but my hands cramped and spasmed terribly. I thought I’d try to see if I could use my sewing machine despite half a foot amputated and despite significant nerve damage. I had my CNA bring it to the table but I didn’t try anything until after she left […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

Pain

I keep sewing and painting through the pain. If I stop for too long I begin to panic. I made it through the April rains into May, which I hope is a smoother, less painful ride. I’m a bit tearful and tired and hope to sleep soon because I really can’t stand this. I can […]

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(CRSD) Reflex Sympathetic Dystrophy Artists Thoughts Chronic Pain Lupus Self Portrait The People Behind My Eyes

Therapy Review : Acceptance. Art Flame

Content : Brief suicide check in. Explaining myself, memories. Acceptance. Pain. So I walked into the building and my pain level rose to a nine out of ten. From the knee down on both sides it hurt like all get out. I told Dr D that I worry I eventually won’t be able to walk […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain The People Behind My Eyes

Relaxing With Joey

This boy has been snuggly all day. I just love it, but he’s got to get off my chest soon because he weighs 11 pounds and feels quite heavy on my chest. It’s great when he’s on my legs though. That’s helpful, so is oxygen, which I’m fighting for right now. Lol One of the […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

All Flare ups End

I have to remember that all flare ups end. It feels like they won’t but it will. It takes time I feel like I don’t have to give. The pain is intense. If I put pressure on the foot it starts to burn like I dipped it in fire, but it stops burning within minutes. […]

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(CRSD) Reflex Sympathetic Dystrophy Anxiety Lupus PTSD The People Behind My Eyes Therapy Review

Therapy Review : Suicide Disease. Hope Art.

Content – Talk of suicidal feelings surrounding Chronic Relex Sympathetic Dystrophy (CRSD), some hopelessness, hope art and talk of anniversary dates. We talked about how hopeless it feels to walk into the ER believing it’s a source of relief only to be told that there’s a crisis out there that has nothing to do with […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus The People Behind My Eyes

The Pointless ER Visit

Well then, I guess even the ER is refusing real pain therapies to people with documented Lupus and Chronic Regional Sympathetic Dystrophy (CRSD). I showed up at a sustained level 9 pain with my foot and leg messed up only to be given a line of crap and some Tylenol. Uh huh, Tylenol! I cried. […]

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(CRSD) Reflex Sympathetic Dystrophy The People Behind My Eyes

Positive Doctors

My Oncologist /Hematologist is such a positive doctor. Today he again told me I’m a walking miracle and that I should not worry about the future. He said to keep taking the medications, keep my appointments and move forward. He said if it happens again we’ll deal with it. He explained what the doctors would […]

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(CRSD) Reflex Sympathetic Dystrophy Abstract Art Lupus Originals Paintings Paper PTSD Sketchbook diary The People Behind My Eyes

What if?

All “what if” roads lead to nowhere.  I decided to draw a little line drawing with my funky triple lead colored pencils to depict all those “what if” roads I’ve been going down. It’s not a great photo but the idea is there. It’s a drawing of roads going everywhere, fast. What if I die […]

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(CRSD) Reflex Sympathetic Dystrophy Chronic Pain Lupus PTSD The People Behind My Eyes

Where?

Where are my coping skills? Where is my ability to handle my health issues? I wish I could say I am emotionally better than the last time I was in the hospital but I’m not. I’m just as shocked and stunned asking, is this really my life? Seriously, they were going to take the rest […]