Category: The People Behind My Eyes

Bad Things Happen to Good People

Posted on by F.Magdalene

It’s sobering to think that no matter what we do or don’t do, bad things happen, sometimes in rapid succession.

There’s an historic example of a man who lost loved ones, employees, finances and his health in no time flat. When I think about his life before disasters struck, I can see he did everything right, then blam! When reading that account there’s something I noticed, something I missed about it 5 years ago. He asked a lot of questions to help him understand his situation.

This poor guy got a lot of flack from people who should have supported him but didn’t. True help came from an unexpected sourse. But what gives me pause is how the gentleman handled himself during the entire nightmare. He listened more than he spoke. That’s significant for me right now.

I have so much going on with my health that I wonder how much one body and one mind is supposed to take? I’m not alone in piling up devastations.

I’m shocked and horrified by what my friend from the hospital in 2018 has gone through. It’s not bad enough she has Lupus, was on life support, had a stroke, had to relearn everything from being paralyzed to the point she was only able to move her pinky finger. Do you know the fight it takes to come back from that?

She spent significant time in a nursing home which is where we met. After she left and hoped to move forward, she had cancer and needed a double mastectomy! All without the support of her parents, for whom she openly grieves. Really?! Can our girl please have a break, too?

I think I understand even better why it’s best to take life one day at a time. I make arrangements then do day to day battle towards the fulfillment of the arrangements / goals. A day at a time is hard enough. I’m not about to double up on troubles.

As it stands, I’m going to need 2 hip replacements due to avascular-necrosis (AVN), the left is first. I can hardly sleep bc the pain has been high. Sitting can be difficult.

I’m discouraged if not fearful. I don’t want to have a knee jerk reaction to anything but I do want to prepare. I’m so grateful for having a good CNA. Please let her stay!

I’m working to downsize my responsibilities. In addition to selling 5 of my largest plants, I’m going to need to downsize pets before a yet to be scheduled total hip replacement on the left followed by an eventual total hip replacement on the right.

I’m going to rehome my two Madagascar Tomato Frogs as one complete unit. They come with their bioactive terrarium. I placed them on Marketplace and listed the various plant types, hard wood, hides, lights, screen and locks. These were purchased from Josh’s Frogs as early juveniles. They remain healthy at age two.

I hate to see the Tomato Frogs go. There’s no way on earth the 100g White’s Tree Frog terrarium is going anywhere. Don’t even ask lol The only pets being offered are the Tomato Frogs. Everyone else is staying. We already know Joe Schmoe’s place is secure.

Emotionally I feel hopeful about this. I fear having hope that maybe…. maybe with new hips I might walk again. I’m afraid to put my energy into what seems impossible.

As I was writing this, it occurred to me, I shouldn’t feel stupid just because something I hoped for didn’t turn out. For some reason I thought, if I openly hope to walk again but it doesn’t happen, I may feel foolish. And I will have made others hope without pay off for their support. This is wrong. Who wouldn’t hope to walk again? Who? And what friend witholds support because their personal pay off isn’t high enough?

I fear disappointing people. If I don’t walk will I have wasted their time? l honestly feel ashamed that I’m getting ready to put my friends through yet another ordeal. The hip replacement isn’t the ordeal, it’s my blood disorder related to Lupus that has me so worried.

My hope is to listen to the support of my friends without countering it with fear of disappointing them.

I intend to speak less and hear more. I don’t mean silence. I mean that my personal expressions and opinions don’t have to be shared in full, at all times. In my private life, I need to allow others to express themselves more.

There’s a time to speak and a time to listen. If I’m talking to a friend, I’ll hear more and speak less. In a group of people I don’t know well, listen more, speak less. Perhaps by not dominating the conversation I’ll hear the tid bit I need that changes the day from burdensome to manageable.

Faith

Suicide. Secrets. Imaginary boxes.

Posted on by F.Magdalene

Subject matter – No details of anything but I do talk about where I am with grief. Very emotional….

I’m all over the place today. Today my CNA asked about K. I basically just said that sometimes young people don’t have enough life experience to fully understand “this too shall pass.” We talked about her children and grandchildren, about life goals and achievements. It was nice. What I didn’t expect to was to have yet another conversation about suicide a little later in the day, online. That conversation felt like it wiped me out. I had a headache by the end of it. I still hope that person is ok.

I’m struggling with concerns about being weird. I don’t know how to change that so that people who are a little more typical won’t run away. I feel like I live a life of secrets sometimes. People in my everyday life can’t know about the Dissociative Identity Disorder. No, most people aren’t able to handle that. Society barely can manage PTSD, they sure don’t need to try to manage the DID. I’d never tell my CNA she has more than one client.

I wonder if there will ever be a space I can share with another human being without fear of being ostracized, without misunderstanding basic human intentions?

I just read that sentence and it occurred to me that I feel alone and lonely.

There are many things that now feel like they fall into the “I can’t” category. I long for adult conversation outside of my apartment, which happens to be an extension of inside my head.

I feel like a trapped animal while sitting in a wheelchair.

Last Monday I talked to Dr D about trying to put away issues I can’t do anything about or that I’ll deal with later. I don’t like the standard way he showed me so I changed it a little bit. He said to visualize putting problems in a box then put the box up. That has worked once for me, but not again, so I changed it a little bit. I have two small treasure chests. One small box holds letters and notes about things I can’t do anything to change. The other treasure box is a little larger and holds issues that I’ll manage at a different time. The two boxes don’t sit out in the open. I put them up.

I have no intention of adding anything at all about K’s death bc it feels like his death is all I have now. I’m afraid to let go of the grief. There are no new memories to be made with him. There’s just grief. If there’s no grief then even the memory of him feels like it will fade. I feel like I’ll fade.

Its odd to hate the grief but still that’s all that’s left. I still see one photo of him in my head. He’s 3. He smiled at me over his shoulder. I think of that photo now and I want to ask him, why did you make me love you if you were just going to leave like that! Why did we survive, what was all that for? I try not to let my head go there too much.

I have a question for him – knowing everything we know / understand now, would you do it all over again? Would you take your life all over again?

Its late. I should eat something. I could use a good meal but that won’t happen until tomorrow.

Faith

Art and Processing Life Changes

Posted on by F.Magdalene
2023

Anxiety, her name is Faith

This last week has been trying. My head tried to take me down depression street. I needed rest from the world so I turned my phone on do not disturb for the most of the day. I’m definitely trying to take one day at a time but there’s so much from yesterday that plagues me today. Today I had yet another tooth that broke off at the gum line. Unfortunately, it’s in the front.

I have issues with dental hygiene because I can’t use toothbrushes. I can’t stand the way it feels in my mouth. The dentist gave me mouthwash but the damage to my teeth is significant. If I had it to do all over again I’d find a way to keep them healthy. How, I don’t know.

I’m painting a piece about loss and finding traction to move forward. This is much larger than usual for me. I’ve been planning a painting where the wheelchair is made of sunflowers.

detail left side

It feels like a piece that is helping me truly let go of some of these things that pain me. It’s no where near finished but working on it has helped me deal with overwhelming anxiety.

My little place genuinely feels like an art studio now that I’ve got a bunch of art in various stages of completion.

SOLD

I’m pleased that my little bag holder doll with glasses has found a home. The glasses were the final touch. 🙂

Joe Schmoe, age 14

Despite the fact that it’s not even midnight, I’m going to take a PRN and go to sleep. Joe and I need a fresher start tomorrow. Better sleep will do a lot to make tomorrow better than today. Let’s just hope I don’t need to go to the restroom every 2 hours like last night.

Dang, menopause is kicking my butt! Is my bladder the size of a pea now? In addition to menopause, my bladder is over active when I’m feeling stressed. It’s helpful to know my symptoms (over active bladder) so I can then respond appropriately; manage stress better, don’t internalize so much.

In addition to snuggling with Joe, I’m looking forward having dinner with friends, at my place, on Sunday.

Faith

Remnants. Art. Seeing.

Posted on by F.Magdalene
Behind the curtain. Behind the light.

I’m getting ready to start physical therapy here at home to help some of the healing along due to recent falls. I’m pleased it’s at home. I told the doctor I’m not able to tolerate going to a center for physical therapy because of the setup. There’s too much public activity, noise, movement and touch, for me to be able to think straight and not panic.

The painting shown is still being worked on. It’s one of my collages, which I have found myself drawn to lately. I’ve got many pieces of this and that saved art piece that on their own doesn’t work but added to other cut outs, makes a great piece of art.

This is very indicative of how I’ve been feeling. In my head, I see myself as fractured and torn, both physically and mentally. It feels good to take the remnants of my art pieces (pieces of me) and make something good come out of the broken pieces. It’s similar to what the Japanese do when putting pieces of a broken bowl back together with gold. My goal is to improve self esteem. I also enjoy it.

General updates

  • Soon iI’ll know a decision from my insurance about a new Jazzy Pride electric wheelchair.
  • Joe just turned 14. It makes me a little nervous. His only issue is from the stroke. He doesn’t see as well.
  • Joe is still very much a service cat. He still alerts me to my blood pressure dropping too low.
  • I learned to make sour cream from my homemade yogurt. I’m growing my own ginger and turmeric inside. This growing season I’ll do spinach and salad greens with grow lights. The point of all this homemade stuff is to shave some off my grocery bill.
  • My OCD has been raging but I’ve been able to challenge it. Things go terribly if my thinking is too disordered and I’m overly stimulated. When that happens I have to go on an apology tour.
  • Dissociation and switching has occurred regularly, including switching while my nurse and CNA are here.
  • I’ve been able to paint as before with no real issues. There’s one painting in my Etsy shop.

Another physical change has taken place that affects my art. I can’t see! Dang it! I have to wear glasses to read or see anything in front of me, including my dinner plate. I can see far away, though. I need to see the eye doctor soon for prescription glasses. For now I’ve got bifocals from Amazon. I like them. Life is easier all around with bifocals.

Interesting is that it feels weird painting through glasses. It feels like I now have a physical barrier between me and what I’m creating. It feels like I’ve got my hands through the holes of a glass panel trying to paint or sew on the other side of the window.

Another new tool at home is this comfy Kaftan. I’m obsessed! I also like that I found an Etsy taylor with prettier dresses for the same price. I’m looking to get two more by this summer.

Kaftan’s are user friendly for disabled people with incontinence. I have spastic bladder as a result of the Thrombectomy surgery, which means I have to change depends several times a day. The last thing I want is to take my pants off several times a day because I need to change depends.

These dresses are fun and they are sooo me! I think I’m loving my Oprah glasses and Kaftans. I have one pink, white and green tie dye and one blue, gray, black and white tie dye. Totally me.

Faith / Joan

Finger painting

Posted on by F.Magdalene

I broke both wrists and strained my right shoulder. Yeah. Not good. It’ll be interesting to see how the next 8 weeks play out. That’s how long before the shoulder and wrists start to feel better.

I still need to be able to paint so I’ll be doing pinkie paintings. 🙂 I’ll have to try to cover all cast and wraps. Thank goodness for press and seal.

I’m definitely not ok with this situation but I’m relieved I can accommodate my need to create.

Also, I’m still working on getting an electric wheelchair bc rolling myself around isn’t working right now.

Faith

Artist Thoughts: The Color of Healing

Posted on by F.Magdalene
First dress in 30 yrs

I recently purchased a new dress for the first time in over 30 years. I’d been wanting a kaftan so I purchased a pink tie dye kaftan. That got the ball rolling and lead to dress number 2.

When I was a child I didn’t wear much white because I tend to wipe my hands on my clothes, but unfortunately my family attached my worth to the color white. Here’s what I mean –

In 1992 I was getting ready for a function so I was ironing my white skirt and blouse. As I ironed, my sister kept walking past me saying, “Whore. Whores don’t wear white.” My mother and she were cruel. They wanted me to feel low and loathsome.

My sister was truly a piece of work. I got married in white and I could hear her evil words on that day, too. Fast forward to 2022. Not only am I older, I’m mad now.

I’m upset that my family attempted to harm me in whatever way seemed good. I was shamed so terribly over getting white dirty. It was always such a big ordeal. Living in the house with those two, I knew I was out numbered.

Recently I’ve been trying to reclaim a few colors associated with abuses. I’d been working on yellow for a while. I can say with pride that I have successfully reclaimed the color yellow and restored it to its proper place; next is white.

I’ve been tossing this idea around for a bit. It’s finally coming to fruition. I purchased a long, solid white Kaftan…..to paint in… to purposely wipe my hands on and get it all covered lol. Then of course I thought, what about shoes? So in February I’ll get a pair of knock-off, high top Converse, white for about $20. Converse right now are $115. I’m not trying to make that expensive of a point. Lol

Where the label on the shoe should be, I’ll put a sunflower. To tie the whole statement together, I’ll toss in a white dreadlock wrap and some hoop earrings.

I’m going target a few areas where I have unresolved issues such as over the heart, the lungs and the tassels at the bottom.

Colors of significance will include deep shades of purple bc the purple survivors ribbon is for Lupus, Domestic Violence and Dementia. All of these have touched my life significantly.

I don’t know when I’ll say the dress is “finished”. I do know I’ll wear it around the house to paint in. My paints are permanent and vivid.

A bit of irony – the dress arrived very wrinkled. I absolutely have to iron it before I put it on.

The rest of life is as troubled and discombobulated as everyone else. I’m taking it day by day. I find the world increasingly difficult to manage. I’m worried about the havoc politicians will reek on their world playground during elections. I’m not looking forward to racism being encouraged. Thank goodness I don’t understand the joy people feel when “sticking it” to someone else. But they love it.

While living in excessively violent times, politicians gleefully spit rhetoric to inflame groups and turn people against each other. It’s like it’s a billionaire’s game where the one with the most casualties wins.

Other than that, the frogs are great and so is Joe. The jumping spider is doing well. My CNA situation is “interesting”.

I’m a bit lonely right now though I see people regularly.

Rumination is pretty bad still. My emotions get intense but not like months ago. Sleep is too much or too little. Appetite is zero still, and last but not least menopause is kicking my butt.

At least I’m not as reactive and emotional as I was. I can catch myself sometimes, before I start, but it can be difficult to stop once started. I feel shame because I don’t feel I have the control needed to maintain interpersonal relationships. I’m worried about it. We’re still tweaking medication though.

That’s about the size of it.

Jordan

My Goals are Still in Sight

Posted on by F.Magdalene
New big ol glasses

I’m still rolling. 🙂

What an exciting few weeks. I went from mourning my old CNA to getting a new one with whom I am very well matched. Having her means I can let her do some things and leave other things to me. I can keep up with my letter writing and other forms of reaching out to people. And I can keep up with my artwork.

My goal was to re-open my Etsy shop but I’m not ready for that. I can paint and sew but right now I need to wait a little while longer. I’m ready to do the art, I’m not ready for the stress of opening up the shop and getting stuff out on time. The goal is to do so but at this time there is no tentative date.

I’m pleased that rumination has decreased, which makes thinking much easier. The depression is better under control, and my physical health is holding steady. Concentration is crap. It’s awful but at least I’m completing things even as I bounce from project to project. I have zero concentration any more.

Anxiety is wicked. I’ve changed up how I do my Delta-8 so that it will help with anxiety more and kick in sooner. Sadly there isn’t any guidance on this. It’s trial and error, but at least it’s still federally legal and the cost is still within my means.

THC brownie bites

I baked refrigerator dough cookies and brownies. I cut them into dose sizes then dripped liquid THC over the top of the goodies. Works like a charm. It can be done with THC butter, too.

THC cookie bites

My metabolism is deathly slow which is why it takes 2 hrs for a bite size edible to kick in. It lasts up to 5 hours though.

Pain is not my friend. Anxiety isn’t either, but the depression and physical pain is significantly less, which has raised my quality of life. I’m still a bit reactive but not even close to how I was. Eating is a chore but that is getting better, too.

Wow. Food prices! No matter how much food costs increase, my budget for food has not. It’s been stuck at $200 a month for a while now with no sign of change any time soon. I’m blown away by food prices. I’ve been trying to see where I can clip pennies but I’m not sure where anymore. Perhaps it’s not totally a bad thing that I have zero appetite. Amazon Fresh is so high right now that it’s straight up robbery!

Menopause – well, I haven’t gone to jail yet. A terrible hot flash at least once an hour. Decreased ability to handle stress. I click on people! An Amazon employee had me so frustrated that I asked to speak with someone else. She said, who? “I said, I don’t care, anyone but you.” I really wish I didn’t say that to her.

So, things are progressing in a manner I couldn’t see 6 months ago. I want to remember that even in the worst circumstances, everything changes. And since I am involved and invested in life, chances for positive change is strong.

I’m happy I lived long enough to truly believe and trust that things change. Youth doesn’t provide enough life experience to fully grasp that things change for the better and you can move past what feels impossible. I wish my brother could have understood that.

Writing another page of life

Faith – Morton’s Pride

Anxiety. Support. Long Haul.

Posted on by F.Magdalene

I bought a second sketchbook that’s small and easy to take with me if / when I leave the house. It’s also easier to hold in bed. And for the first time in a good long time, I had to buy art supplies. I was able to get ahold of the paint needed so I’m happy with that.

Right now I’m making the art supplies area more disability friendly.

Symptoms of the clinical depression (my nervous breakdown) significantly decreased but have crept up again. After my aide left, a person with whom I felt safe) abandonment issues began to derail me. At least this time I know better than to wait to see if the depression, anxiety, etc will get better. I immediately began using the skills I’ve learned in the last year so as to never revisit that horrible-for-everyone, deep, hollow place.

I remember thinking that everyone has an invisible line that represents a division between coping and totally losing it. It feel like as long as I don’t cross that line I’ve still got hope of getting better. Well I blew past that line and had no way on my own to get back. I couldn’t reach inside and pull up strength because I was hollow. There was nothing to pull from. I couldn’t even stop or control the emotions anymore. I felt stranded in the middle of the open sea.

I’m not where I was last time but some of the symptoms are troubling. The decline began shortly after being triggered by the loss of a CNA I felt safe with. Right now I am regrouping and using new skills so I don’t again completely fall to pieces.

I’m grateful for art. I can’t believe I did that mental health crisis with very little art. I had no way to redirect anxiety so it felt like it just sat inside eating away at me.

My included art piece shows individuals with solid black skin. I noticed the color of the shirts as being significant. The person who reflects my current state is wearing an orange shirt. I don’t think I’ve drawn my sister, me and my mother together in at least 5 years. This time it’s definitely all three of us, with me in the orange shirt with one foot and extra long arms.

When I looked at the chart created to record color significance, I could see a bit more into what I’m actually feeling. Come to find out, it’s very much representative of what’s going on in my life right now and what I’ve been thinking about.

The Art Therapy gallery explains color and symbol significance.

  • Orange: Fleeting courage or self doubt, ambiguity,
  • Purple: Self worth, pride
  • Black: Emptiness, vacant, does not exist, emotional death
  • Red: Strength, courage, empowered

My mother has been on my mind quite a bit because of my menopause symptoms. I remember seeing some of this as a kind.

I remember one winter my mother only wore a long, thin, black trench coat (it was the 80s ok) despite the fact that it was freezing cold. Several years later she had it so cold in the house that I wore a jogging suit to bed. Fast forward to 2022. The heat is still off. I had no idea menopause would be so life disruptive. My friend said her severe covid was easier than menopause. Wow.

Lastly, I did finish stealing the art piece but I’ve not put new art up for sale. I’m not certain I’m ready for that step just yet. I’m just going to keep at the art while working on emotional issues.

Faith

Wheelchair Life: Grow Where You Want to Grow

Posted on by F.Magdalene

I’m in my feelings today. I feel very limited, if not left behind. I’m mad at wheelchair life right now.

I truly enjoyed being at the park with friends for a bonfire back in October. That was so healing. Right now though, I long to wander, to hike trails and sit under a tree with my dog. I miss that today.

P17fieldfma - on the easel

I hope to get an electric wheelchair soon which would let me get to the front of the building, down a very long ramp then finally on the sidewalk. The sidewalk stops at the property line. No sidewalks. That’s a problem. We’ve lost 2 residents in 5 years bc they rolled in the street. I’m not doing that. There’s simply no where to go off property that’s wheelchair accessible.

I can’t tell you the longing I have to go outside my window and get to those beautiful rocks. I was told that our screens raise up. I don’t have to take it out then struggle to get it back in. I’ll have care again soon so I might test that.

The best way to manage my aching heart here is to do something for others. I feel like a trapped animal right now. Well, let me get outside this trap by reaching out.

Sitting in the grass keeping my problems in perspective

I’m so happy to say that my pen pal list has maxed out. It’s full. I actually have 20 letters that go exclusively to the elderly in nursing homes. They write back 🙂 Also, all the spots for plant homecare / babysitting are full.

I just added a monstera deliciosa from a wonderful person who needs nursing home care due to dementia. These’s a spider plant, monstera, rex begonia and an African violet that I’m looking after. Most are of memory care patients but one is from a person who takes care of her grandfather who has dementia.

It feels good to help with their favorite plants that they’ve taken care of for a long time. It’s something I can give to my friends who have been so giving to me.

There’s a plant that belonged to three generations of very lovely people. I’m so honored! Being able to take the plant torch is an amazing feeling.

Faith

Life in Pictures – The Assignment

Posted on by F.Magdalene

My abandonment issues have raged since the exit of the CNA I adored. She’s been gone for a week now. It’s affected my trust issues, paranoia and OCD issues. Going through the week with her knowing she would be gone in a few days was rather difficult.

I can feel the anxiety and emotion in my throat. I’ve been dealing with it by concentrating on art, plants and the cat. I’ve done so very little volunteer work. Argh.

Poor Joe is going to need a lightweight shirt to wear for the winter. My menopausal symptoms have affected heating the apartment. I can’t take this heat! I had it so the heat would come on at 65 degrees even while I have an 8 inch strong wind fan blowing on me. It’s not good right now LOL I’ve only turned the heat on about 3x since the season changed. How is it possible to be anemic and have hot flashes hourly, daily!

There was a day again where Joe seemed to have trouble with his front paws so I made him a bed, this time it’s on the floor. I would have made a box bed for him but my cat hates boxes. He doesn’t get in them. As a matter of fact, Joe runs when he sees a box or plastic bag. Yeah, he’s odd.

I thought I’d try to track the barometric pressure so I can kind of anticipate his arthritis pain and mine. Getting too cold will only make matters worse for him. I hope getting a lightweight shirt will help. It needs to be light bc cats can overheat too easily.

When Joe isn’t wearing his shirt I could let him use his bed with a safe heating pad that auto shuts off every 2 hours. I can set it to a low temperature and put it under his blankets, like I did last time.

I’ve done nothing more with designing Frog Mansion. It’s set up nicely but it’s not finished. I’ve done nothing to the Tomato Frog Apartment 🙂 I’m not calling it that LOL It’s just that it pales in significance beside Frog Mansion where my Australian Green Tree Frogs live. Anyway, I intend to work on it at the the beginning of December, at which time I’ll also add more soil and leaf litter to the Mansion.

Putting many of my houseplants in the mansion didn’t give back as much space as I thought but it has helped me simplify my watering system. Now I water plants 3 days out of 7 instead of daily. And it only takes anywhere from 20 min to an hour to water. I love how simple it is now.

I’m uncertain if I spoke of my hope plant. I’m seriously in love with this plant bc it’s name is my favorite word; hope. It’s in the peperomia family, which I’ve come to enjoy lately.

I would be lying if I said I’m not going to buy more plants but I will say they’ll have to wait bc I’m going to need paint. I’d like to get to Hobby Lobby but I don’t think it’s going to happen. It would save money though. I’ve never purchased from their website.

I’m stuck on the art piece in the photos because I now regret adding the ghost-like memories leading to and through the house. I’m not certain how I’ll make it look right. I’d remove them if so many other images weren’t dependent on the ghost-like memories.

I’ve got a completed painting that I’m determined to completely seal by Monday. I seal paintings in very small areas at a time because I don’t want pooling, running or gaps in the seal. I’m not going to spray it, so it’ll take a little time.

I’m not sure why I’m procrastinating. In general I’m not a procrastinator but I’ve been putting this off for 3 weeks. I’m having trouble letting go. I think I’ve been unsettled and I’m holding on to things.

To also unsettle me are the recent mass shootings, three back to back with a horrific quadruple knife murder. I don’t even know how to process this stuff and manage my own horrors.

I check the news online once a day, from various sources.

I will continue to have zero friends on my Facebook page so I can limit the amount of exposure to politics and the hatred it produces.

Despite the fact that the world has gone mad, I feel 99% like my normal depressed, anxious, dissociative self. Do I feel strong? No. I feel prepared and supported. I feel I better understand this part of the assignment.

Faith