The Other Side of Sanity. Covid.

I’ve written several paragraphs only to erase them. I’m emotional and all over the place only to come to rest on afraid. I’m afraid.

The way through will be long and arduous.

I don’t feel so good.

The man and his company who called me pious and lion like has been fired. Knowing I hate water he said I’d enjoy two showers a day and that the caregiver would need to daily check my skin in the shower for possible skin infections. He would be the one to take me to the grocery and pet store, not the caregiver. If he didn’t want my case he should have just said so. There are over 700 companies in my area I can call on for care, seven hundred. The thought of that man returning makes my skin crawl.

Beans. I’m on a bean kick again. Legumes are my friends.

The Psychiatric Service Dog will be about $17,000. Everyone is on board with the idea of me getting one. I’ll start looking into grants soon.

I hope to paint soon, too but Covid is kicking my butt. No changes either way. Today I tore up an orange juice spiked with coconut water. Very refreshing. I later had a chicken thigh, fresh fruit, cheddar cheese and a slice of avocado.

My bblood pressure has been all over the place, dipping way down. My body temp even dipped to 96.9. I’ve sweat like nobody’s business! This is crazy.

Poor Joe has been alarmed. He’s sticking very close.

He’s such a good guy even when he smacks me in the head with his tail.

Faith

Epiphany: A Future that is Mine

CONTENT – Child Abuse. Strong emotion. Therapy Review. The art work is not finished but will eventually be in my Etsy shop.

If I believe I have a real future and a real hope, why do I keep wanting to go back and fix things? Why do I still feel like that little girl who needs her mother to love her?

No, it’s too late. I know she’s gone but I feel myself unable to give up. But not giving up the past means there’s less room for the wonderful future ahead, a future I firmly put faith in.

Today Dr D ask me if I could say anything to her what would I say? My words are in bold. I told her Don’t touch me! Don’t look at me! Keep away! You keep saying you’re going to give me a way, then do it!

That comment was interesting because the entire time I was talking to her I never said I love you or why don’t you love me? I never said hug me. I never said anything like that. It was it, Get away from me! Get away from me!

I didn’t want her to touch me ever again. I was angry about her watching me. I was angry about her letting others watch me. I was angry about all of the touch. I was angry about her destroying the mind of my sister. I was angry about her destroying the relationship I could have had with my sister. I just wanted her to go away. That was different from the feelings I thought I had. When I had the “spontaneous opportunity” to speak it was the voice of rage not a tiny, vulnerable child. That was incredible.

The artwork I’ve been doing lately shows exactly how I feel about my mother’s voyeurism. She was everywhere to the point that it was scary. Now that I think about it, if she stalked her boyfriend with us in the car of course she stalked my sister and me. And she wore that stupid black coat with the stupid hood looking like the grim reaper. She wasn’t holding anything, but dang! Standing in a pitch black hallway in a black trench coat watching people like a psychopath!

She told me she had people watching me and my sister and that nothing could be hidden from her. Dr D jumped in an said, “This is why you have DID.”

It was the most terrifying time of my life growing up with her and yet I thought I wanted that woman to love me. I wanted a little child me to go to her. To run to her. To be held by her.

Are you kidding me! No way! This is the woman who beat my lips with a wide tooth comb. Who beat my body with a towel rod. No. No. I have got to scrape this off of my heart so I can let myself have that future that’s so right in front of me. I’ve been crawling towards it. How do I scrape this off of me, the filth that she layered on me? The filth belongs to her. Whereas a future filled with hope is mine. I believe that with all my being.

Faith

What Keeps Me Awake – Death and Dying

I have more trust that tomorrow will come than I did six years ago, still I live as if I’m breaths away from dying. I feel overwhelmed with the idea of dying which makes me wonder what will happen to all my plants I’ve worked so hard to nurture? Who will take my frogs if I die? Will they appreciate small moments with aquatic frogs and cute poses by the tree frogs?

And Joe, who will care for Joe? He’s 14. I’m his second home. Being passed around can be difficult.

My CNA has covid and will be gone for a bit. I was with her a day before she tested positive. I’ve consistently tested negative, as well as no fever.

You know what’s funny? I’ve got a very nice fill in but she’s not up to par with my regular CNA. Despite calling her a psychopath lol, her standard of care is significantly higher than others; this, on top of taking the time to get to know me, makes her a really good CNA.

I like the person I have right now, the cat does, too, but would she ever take the time to get to know me and work with me long term? I wonder, if I had to get a new CNA will it be difficult again? I’ve come to understand how difficult my OCD can be to work with.

I wish my regular CNA had to experience two clients before returning to me. The feeling of not knowing what you’ve got till it’s gone, goes both ways.

She most certainly has OCD though it manifests itself differently. Somehow we work well together. We’ve even sit down and talk about the books I have on OCD.

There’s a Japanese artist named Yayoi Kusama whom I relate to very well. She’s got OCD and other issues but it’s her OCD that I relate to the most.

Yayoi shamelessly paints what she sees in her head, in bright colors.

She’s known for painting dots and pumpkins.

Yayoi helped me let go of shame concerning how I express chatter in art form.

I scribble and sketch in order to process the constant talking in my head and the oppressive amount of stimulation I feel.

I have quite a few pieces of chatter art. To me, my chatter art feels different from art that I call chaos in color because the chatter has very little focus, no space unfilled, no place to rest the eyes, yet a legitimate expression of art therapy.

Yayoi spoke of feeling like the “modern day Alice in Wonderland.” I can’t count the amount of times I’ve called myself the Black Alice in Wonderland.

It feels good knowing my art has a place out here and that I don’t have to feel crazy about it. It’s ok to identify with Alice and Wonderland. It’s ok to let the art simply be a copy of inside my head, and to do so in emotive fashion.

Recently I’ve been using alcohol ink. It works well for what I’m trying express, and they travel well.

The artwork above is a combination of acrylic paint, neon acrylic paint, alcohol ink, black ink, gesso, paper.

I love how Yayoi prefers paper, too. I’m strongly considering writing to the 94 year old artist way over in Japan. She’s made a deep impression on me.

It’s encouraged when I find female artists like Yayoi and Freda Kahlo who by example, give my art legitimacy.

Tonight. I’m not sure why I’m overly stimulated. Concerns with death are extreme. Thank goodness I have plenty of art supplies.

Faith

A History of Eyes on Me

Content: Abuse. Being watched by abusers. Sadism.

Publishing this art piece comes at an odd time seeing as how I just talked about store workers profiling and following me and my caregiver at the store. It’s also not concerning imaginary audience / fable but an all together different type of being watched.

I was never sure why my mother was watching me. I was more concerned by her method of watching me. Although I know she watched me and my sister around the second grade, my most vivid memories are the 4th grade when she wore her trench coat and stood behind the door motionlessly.

The coat was her regular coat. It was a black trench coat. When the lights were out we couldn’t see her, nor were we looking for her. But if we saw a motionless figure in the hallway it scared the crap out of us. She’d make sure we’d seen her before walking away. No words. Just walks away.

After a little while I worked hard not to show I was afraid. I’d either say nothing or turn around to the door and say something to her. I had to guage how far I could go in pretending she didn’t scare me. I knew there was a response she was looking for. If I withheld that response too much, I might regret it. When being beaten with a dowel rod I knew I had to give the response she was looking for.

"She speaks the dream" - available

When being watched in the room alone, when showering or using the restroom there was a response she was looking for. I always wondered if there were times she wasn’t trying to get caught and see my reaction. This game of watching went on all the way to the day before I moved out. She listened to phone calls when we had a corded phone. I owned nothing, especially my body.

When I moved to Florida with my mother’s sister, my cousin and an uncle by marriage, I thought life was going to be good. He said he would treat me like his own daughter. That one sentence makes me want to break into tears. The irony of it is cruel.

Roses for Jane - available

My cousin was his step daughter. She endured more abuse than me. Having me dress up. Making crude comments. Watching me. If I turned around and saw him watching through the cracked door, he too would stay just a few seconds longer before quietly leaving.

I’ll be keeping A History of Eyes on Me a little while longer. It’s hanging in my own art area beside the painting She Speaks the Dream, which was created in 2017.

Observations – The painting called Roses for Jane was remade. In addition to more eyes, I brought out the figure in the back then made a dramatic leap by dividing the main figure in black and white. I kept quite a bit of the original twist and turns while softening her face by one notch. As a person who uses sunflowers for emotional expressions, it interests me that not a single flower is on the original piece or the new. The main figure is no longer standing in the dark.

Thank you for coming to Sundrip today.

Faith

You’re Strength Painting. Next Year’s Art Goals.

It took a month instead of two weeks to complete the painting of sunflowers with the Scripture. When the painting was picked up she ordered one for herself. The other person who saw it ordered one. I’ll be doing them on paper. I seriously do not enjoy canvas.

One of my art goals for next year is to increase the amount of art that’s based on Scripture.

I also like the idea of painting my cat, but I’m pretty bad at animals. Maybe I’ll just keep photographing him.

Michael Joseph Austin aka Joe Schmoe, is going to be 15 next year. Honestly, it kind of scares me because I worry about losing him. It’s been 2 years since he had a stroke. His eyesight was affected, other than that he’s the same cat.

There are three goals for the next creative year 🙂

  • Scripture based art.
  • Painting cats in an outsider art kind of way.
  • Paint butterflies in outsider art kinda way.

I’ve joined a group about butterflies and have seen some absolutely amazing creations. I have to paint them! I’ve also got a book I was given by a good friend.

Those are my new year’s goals.

Gratitude List

  • I’m entirely moved by the varied designs, textures and vivid colors of butterflies.
  • Cookies. Above any other flavor, I love big sugar cookies with icing and sprinkles. A friend brings them sometimes.
  • I enjoy trying new things. My CNA and I laughed so hard at how bad bison steak is. So, so nasty! The texture and taste is a catastrophic collision that may have killed taste buds. Just wow lol. I’m grateful for the ability to laugh and still appreciate the experience due to the laughter, and I’m looking forward to trying other new things. 🙂

Faith

Freedom. Up Hill Battle.

I paid a heavy price in pain for a little bit of freedom from my wheelchair. I decided to walk about 100 feet up a ramp to my apartment. I needed to stand up at my normal 5 foot 3, and see the world from the angle I was accustom to.

The problem with walking outside is that I can’t feel the ground under me. With shoes on, I can’t feel the ground. It takes a lot of concentration. But today I needed freedom. I swear I feel like a caged animal willing to pay a high price to have someone open my cage and let me out.

The price I paid for about 100 feet is extreme pain in both hips. Both hips have avascular necrosis. I’m having terrible spasms. All of this just to stand up and walk for a little bit.

Was it worth the cost? Yes, for a few moments, walking in the sun, yeah it was worth this.

I’m in bed right now willing a slice of pizza hut over here. Lol It’s in the kitchen. Lol. But I’m writhing in pain. My legs hurt so badly, they’re squirming all over the bed down there. The pain is from the ankle up to the knee then both hips. I really want that pizza though lol.

My little walk reminds me very much of my little painting called Up Hill Battle. I guess sometimes the hill seems small to others but that doesn’t mean it’s not a battle for the person trying to climb it. We never know how much baggage a person is carrying, mental or physical pain. Even the slightest incline can be a struggle when the person walking is carrying a heavy load.

The miniature is complete. I gave it a nice seal yesterday. My intent is to have it in my shop this evening. If you don’t have an Etsy shop but there’s interest, you can send me an email. I accept PayPal. All contact info is on the sidebar.

I’ve been craving pizza for days. I really want that pizza in the kitchen but the price is a little high for me to get up and get it. I’ll use patience. I’ll rest then have pizza later.

It was still a nice day. I love outing day 🙂 Please let this CNA stay. I adore her.

Faith

Healing. Heart and Rock Art

Fractured but still joyful

Drawing and doodling continue to be my primary way of relieving anxiety; however, I may have a new way in a few months. Before the wrists, my doctor approved me to do one hour of vigorous exercise each day. I enjoy exercise. Always have.

I was going to go to the gym on “amputee night, ” as well as other planned physical activities. I can still do some stuff but the gym is going to have to wait. It’s going to be a bit b4 I can do that much.

It’s the small bones in the base of the thumb and wrist area that are broken. I chose not to have a fixed cast bc I’m a bit claustrophobic. So far I’m dealing better adjusting to the ones I have. Still kills me it had to come out of my pocket!

I’ve been painting more rocks while wearing the basic wrist braces I have. I also noticed that lately, hearts have shown up quite a bit in my art. I put in on the chest of figures or hide them in crosshatch or shade. Now I’ve moved to painting hearts on random rocks. I feel compelled to do it. I’ve not explored why, and I probably won’t. But I am allowing myself to paint hearts on rocks.

One rock has a heart on top but the rest of the rock is black. Mixed in the black are hints of blue and orange. I sealed them with Mod Podge. I’ve still got the painted rock from when I was in the hospital. 🙂 These guys make great encouragement when arranged together in a bowl.

The casts kinda hurt and they don’t let me do too much. Using the restroom is interesting. Lol.

For a bit the broken wrists took me back to one of the best years growing up. During my Sophomore year I rode my bike to theater club and loved it. I saw my mother very little. I remember fondly how life was very much a teen movie plot. I remember the summer and how much fun I was having. My sister had fun too but she shattered her wrist that year. She also stole my boyfriend. See what I mean, teen movie drama! The Breakfast Club. Pretty in Pink! There was deception, inner conflict, school life and music 🙂 I remember dedicating love songs on the radio to my boyfriend. I love memories like this bc they’re normal and innocent. Sisters make immature mistakes. We were just kids.

It’s helpful for me to look back and see normal parts of childhood. It feels important to have affirmation that I wasn’t a victim child being abused 24/7, like that was all I was alive for. I had good times, especially life as a student.

Faith

Remnants. Art. Seeing.

I’m getting ready to start physical therapy here at home to help some of the healing along due to recent falls. I’m pleased it’s at home. I told the doctor I’m not able to tolerate going to a center for physical therapy because of the setup. There’s too much public activity, noise, movement and touch, for me to be able to think straight and not panic.

The painting shown is still being worked on. It’s one of my collages, which I have found myself drawn to lately. I’ve got many pieces of this and that saved art piece that on their own doesn’t work but added to other cut outs, makes a great piece of art.

This is very indicative of how I’ve been feeling. In my head, I see myself as fractured and torn, both physically and mentally. It feels good to take the remnants of my art pieces (pieces of me) and make something good come out of the broken pieces. It’s similar to what the Japanese do when putting pieces of a broken bowl back together with gold. My goal is to improve self esteem. I also enjoy it.

General updates

  • Soon iI’ll know a decision from my insurance about a new Jazzy Pride electric wheelchair.
  • Joe just turned 14. It makes me a little nervous. His only issue is from the stroke. He doesn’t see as well.
  • Joe is still very much a service cat. He still alerts me to my blood pressure dropping too low.
  • I learned to make sour cream from my homemade yogurt. I’m growing my own ginger and turmeric inside. This growing season I’ll do spinach and salad greens with grow lights. The point of all this homemade stuff is to shave some off my grocery bill.
  • My OCD has been raging but I’ve been able to challenge it. Things go terribly if my thinking is too disordered and I’m overly stimulated. When that happens I have to go on an apology tour.
  • Dissociation and switching has occurred regularly, including switching while my nurse and CNA are here.
  • I’ve been able to paint as before with no real issues. There’s one painting in my Etsy shop.

Another physical change has taken place that affects my art. I can’t see! Dang it! I have to wear glasses to read or see anything in front of me, including my dinner plate. I can see far away, though. I need to see the eye doctor soon for prescription glasses. For now I’ve got bifocals from Amazon. I like them. Life is easier all around with bifocals.

Interesting is that it feels weird painting through glasses. It feels like I now have a physical barrier between me and what I’m creating. It feels like I’ve got my hands through the holes of a glass panel trying to paint or sew on the other side of the window.

Another new tool at home is this comfy Kaftan. I’m obsessed! I also like that I found an Etsy taylor with prettier dresses for the same price. I’m looking to get two more by this summer.

Kaftan’s are user friendly for disabled people with incontinence. I have spastic bladder as a result of the Thrombectomy surgery, which means I have to change depends several times a day. The last thing I want is to take my pants off several times a day because I need to change depends.

These dresses are fun and they are sooo me! I think I’m loving my Oprah glasses and Kaftans. I have one pink, white and green tie dye and one blue, gray, black and white tie dye. Totally me.

Faith / Joan

Artist Thoughts: The Color of Healing

First dress in 30 yrs

I recently purchased a new dress for the first time in over 30 years. I’d been wanting a kaftan so I purchased a pink tie dye kaftan. That got the ball rolling and lead to dress number 2.

When I was a child I didn’t wear much white because I tend to wipe my hands on my clothes, but unfortunately my family attached my worth to the color white. Here’s what I mean –

In 1992 I was getting ready for a function so I was ironing my white skirt and blouse. As I ironed, my sister kept walking past me saying, “Whore. Whores don’t wear white.” My mother and she were cruel. They wanted me to feel low and loathsome.

My sister was truly a piece of work. I got married in white and I could hear her evil words on that day, too. Fast forward to 2022. Not only am I older, I’m mad now.

I’m upset that my family attempted to harm me in whatever way seemed good. I was shamed so terribly over getting white dirty. It was always such a big ordeal. Living in the house with those two, I knew I was out numbered.

Recently I’ve been trying to reclaim a few colors associated with abuses. I’d been working on yellow for a while. I can say with pride that I have successfully reclaimed the color yellow and restored it to its proper place; next is white.

I’ve been tossing this idea around for a bit. It’s finally coming to fruition. I purchased a long, solid white Kaftan…..to paint in… to purposely wipe my hands on and get it all covered lol. Then of course I thought, what about shoes? So in February I’ll get a pair of knock-off, high top Converse, white for about $20. Converse right now are $115. I’m not trying to make that expensive of a point. Lol

Where the label on the shoe should be, I’ll put a sunflower. To tie the whole statement together, I’ll toss in a white dreadlock wrap and some hoop earrings.

I’m going target a few areas where I have unresolved issues such as over the heart, the lungs and the tassels at the bottom.

Colors of significance will include deep shades of purple bc the purple survivors ribbon is for Lupus, Domestic Violence and Dementia. All of these have touched my life significantly.

I don’t know when I’ll say the dress is “finished”. I do know I’ll wear it around the house to paint in. My paints are permanent and vivid.

A bit of irony – the dress arrived very wrinkled. I absolutely have to iron it before I put it on.

The rest of life is as troubled and discombobulated as everyone else. I’m taking it day by day. I find the world increasingly difficult to manage. I’m worried about the havoc politicians will reek on their world playground during elections. I’m not looking forward to racism being encouraged. Thank goodness I don’t understand the joy people feel when “sticking it” to someone else. But they love it.

While living in excessively violent times, politicians gleefully spit rhetoric to inflame groups and turn people against each other. It’s like it’s a billionaire’s game where the one with the most casualties wins.

Other than that, the frogs are great and so is Joe. The jumping spider is doing well. My CNA situation is “interesting”.

I’m a bit lonely right now though I see people regularly.

Rumination is pretty bad still. My emotions get intense but not like months ago. Sleep is too much or too little. Appetite is zero still, and last but not least menopause is kicking my butt.

At least I’m not as reactive and emotional as I was. I can catch myself sometimes, before I start, but it can be difficult to stop once started. I feel shame because I don’t feel I have the control needed to maintain interpersonal relationships. I’m worried about it. We’re still tweaking medication though.

That’s about the size of it.

Jordan

My Goals are Still in Sight

New big ol glasses

I’m still rolling. 🙂

What an exciting few weeks. I went from mourning my old CNA to getting a new one with whom I am very well matched. Having her means I can let her do some things and leave other things to me. I can keep up with my letter writing and other forms of reaching out to people. And I can keep up with my artwork.

My goal was to re-open my Etsy shop but I’m not ready for that. I can paint and sew but right now I need to wait a little while longer. I’m ready to do the art, I’m not ready for the stress of opening up the shop and getting stuff out on time. The goal is to do so but at this time there is no tentative date.

I’m pleased that rumination has decreased, which makes thinking much easier. The depression is better under control, and my physical health is holding steady. Concentration is crap. It’s awful but at least I’m completing things even as I bounce from project to project. I have zero concentration any more.

Anxiety is wicked. I’ve changed up how I do my Delta-8 so that it will help with anxiety more and kick in sooner. Sadly there isn’t any guidance on this. It’s trial and error, but at least it’s still federally legal and the cost is still within my means.

THC brownie bites

I baked refrigerator dough cookies and brownies. I cut them into dose sizes then dripped liquid THC over the top of the goodies. Works like a charm. It can be done with THC butter, too.

THC cookie bites

My metabolism is deathly slow which is why it takes 2 hrs for a bite size edible to kick in. It lasts up to 5 hours though.

Pain is not my friend. Anxiety isn’t either, but the depression and physical pain is significantly less, which has raised my quality of life. I’m still a bit reactive but not even close to how I was. Eating is a chore but that is getting better, too.

Wow. Food prices! No matter how much food costs increase, my budget for food has not. It’s been stuck at $200 a month for a while now with no sign of change any time soon. I’m blown away by food prices. I’ve been trying to see where I can clip pennies but I’m not sure where anymore. Perhaps it’s not totally a bad thing that I have zero appetite. Amazon Fresh is so high right now that it’s straight up robbery!

Menopause – well, I haven’t gone to jail yet. A terrible hot flash at least once an hour. Decreased ability to handle stress. I click on people! An Amazon employee had me so frustrated that I asked to speak with someone else. She said, who? “I said, I don’t care, anyone but you.” I really wish I didn’t say that to her.

So, things are progressing in a manner I couldn’t see 6 months ago. I want to remember that even in the worst circumstances, everything changes. And since I am involved and invested in life, chances for positive change is strong.

I’m happy I lived long enough to truly believe and trust that things change. Youth doesn’t provide enough life experience to fully grasp that things change for the better and you can move past what feels impossible. I wish my brother could have understood that.

Writing another page of life

Faith – Morton’s Pride